SynthesisWellcome open research2018
"Giving something back": A systematic review and ethical enquiry into public views on the use of patient data for research in the United Kingdom and the Republic of Ireland.
Synthesis in Wellcome open research, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 83 papers, 3 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
83 citing papers in PubMed, 3 syntheses or guidelines pooled it.
- Social media for palliative and end-of-life care research: a systematic review.BMJ supportive & palliative care · 2024Pooled it
- The ethical and legal landscape of brain data governance.PloS one · 2022Pooled it
- Toward an Ethical Framework for the Text Mining of Social Media for Health Research: A Systematic Review.Frontiers in digital health · 2020Pooled it
- Trial
- Towards best practice recommendations: Perspectives from Australian GPs to inform the use of general practice data for research - A modified Delphi study.The European journal of general practice · 2026Article
- Attitudes of Longitudinal Study Participants and Members of the Public Towards Data Sharing for Secondary Research: A Survey Based Approach.Journal of empirical research on human research ethics : JERHRE · 2026Article
- What is the problem and what can be done when data sharing challenges public legitimacy?Nature communications · 2026Article
- Exploring patient motivations and preferences for medical data sharing with researchers: a simulation study using the iAgree platform.Journal of the American Medical Informatics Association : JAMIA · 2026Article
- Men's perceptions of long-term health outcomes following fertility problems: a UK-based mixed-methods survey.Journal of assisted reproduction and genetics · 2026Article
- Implementing broad consent for research with routinely collected clinical data and residual biosamples in a cancer hospital: using mixed methods approach to evaluate consent rates and patients' perspectives.BMC medical ethics · 2026Article
- Public perceptions of health data sharing for artificial intelligence research: a qualitative focus group study in the UK.BMJ digital health & AI · 2026Article
- The Ethics of Informed Consent for Data Registries: Moving Beyond Moral Minimalism to the High Ground.Bioethics · 2025Article
- If it wasn't for us, there would be no data: stakeholders' perspectives on patient involvement in the use of health data in Ireland.Research involvement and engagement · 2025Article
- Sharing health data for research purposes: results of a population survey in Germany.BMC health services research · 2025Article
- The value of large-scale programmes in human genomics.European journal of human genetics : EJHG · 2025Article
- The Primary Care Medical Record Industry in Canada and Its Data Collection and Commercialization Practices.JAMA network open · 2025Article
- Ethical Design of Data-Driven Decision Support Tools for Improving Cancer Care: Embedded Ethics Review of the 4D PICTURE Project.JMIR cancer · 2025Review
- I don't mind my information going to the Moon, but I don't want any letters from Mars: a qualitative exploration of the challenges with secondary use of health data in Ireland.Archives of public health = Archives belges de sante publique · 2025Article
- What is the patient re-identification risk from using de-identified clinical free text data for health research?AI and ethics · 2025Review
- Discussing Data: A UK-wide public consultation on the use of low fidelity synthetic data for research.International journal of population data science · 2025Article
23 more citing papers are in PubMed but not listed here.
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
3 authors.
Funding
Abstract
PubMed holds no abstract for this paper.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.