ArticlePalliative medicine2019
Perinatal Palliative Care: A qualitative study evaluating the perspectives of pregnancy counselors.
Article in Palliative medicine, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 9 papers.
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Who cites it
9 citing papers in PubMed, 22 citations in OpenAlex.
- Improving Perinatal Palliative Care in the Communities: A Regional Population-Based Study.Maternal and child health journal · 2025Article
- Outcomes of delivery in patients with diagnosed life-limiting fetal condition and evaluation of perinatal palliative care program: a retrospective review of palliative care service over 7 years.BMC palliative care · 2025Article
- "Collateral beauty." Experiences and needs of professionals caring for parents continuing pregnancy after a life-limiting prenatal diagnosis: A grounded theory study.Palliative medicine · 2024Article
- Grasping the meaning of perinatal palliative care for the multiprofessional team.Revista paulista de pediatria : orgao oficial da Sociedade de Pediatria de Sao Paulo · 2024Article
- Parents' hope in perinatal and neonatal palliative care: a scoping review.BMC palliative care · 2023Article
- Specialist perinatal palliative care: a retrospective review of antenatal referrals to a children's palliative care service over 14 years.BMC palliative care · 2023Article
- The Path Is Made by Walking-Mapping the Healthcare Pathways of Parents Continuing Pregnancy after a Severe Life-Limiting Fetal Diagnosis: A Qualitative Interview Study.Children (Basel, Switzerland) · 2022Article
- Fetal Pain in the First Trimester.The Linacre quarterly · 2022Article
- Objective Assessment of Counselling for Fetal Heart Defects: An Interdisciplinary Multicenter Study.Journal of clinical medicine · 2020Article
Corrections and comments
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Authors and funding
6 authors at 2 institutions in 2 countries.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundA prenatal diagnosis of a life-limiting disease raises complex ethical, emotional, and medical issues. Studies suggest that 40%-85% of parents decide to continue the pregnancy if given the option of Perinatal Palliative Care. However, structured Perinatal Palliative Care programs are missing in many European countries. In Germany, parents have the right to free psychosocial support from pregnancy counseling services after the prenatal diagnosis of a life-limiting disease.
aimWe aimed to investigate whether German professional pregnancy counselors perceive the need for structured Perinatal Palliative Care and if so, how it should be conceived.
designThis is a qualitative interview study with purposeful sampling. The interviews were analyzed with the coding method of Saldaña. SETTING/
participantsA total of 10 professionals from three different pregnancy counseling services participated in the study.
resultsThe main topics raised by the professionals were as follows: (1) counseling and parental support during the decision-making process; (2) fragmented or missing support infrastructure for parents; and (3) challenges, hesitations, and barriers, particularly from the different stakeholders, regarding a Perinatal Palliative Care framework. They highlighted the importance of the integration of Perinatal Palliative Care in existing structures, a multi-professional approach, continuous coordination of care and education for all healthcare providers involved.
conclusionA structured Perinatal Palliative Care program is considered as necessary by the pregnancy counselors. Future research should focus on (1) needs reported by concerned parents; (2) attitude and role of all healthcare providers involved; (3) strategies to include stakeholders in the development of Perinatal Palliative Care networks; and (4) outcome parameters for evaluation of Perinatal Palliative Care frameworks.
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