Trial reportJournal of human genetics2019
The survey of public perception and general knowledge of genomic research and medicine in Japan conducted by the Japan Agency for Medical Research and Development.
Trial report in Journal of human genetics, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 13 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
13 citing papers in PubMed.
- Impact of Precision Medicine on Cancer Education in Japanese High Schools: A Questionnaire Survey.Journal of cancer education : the official journal of the American Association for Cancer Education · 2026Article
- Re-consent practices in biobanks in Japan: current status and stakeholder perspectives.Journal of community genetics · 2025Article
- The Public Knowledge of Precision Medicine and Genomic Research: A Survey in the Aosta Valley.Journal of personalized medicine · 2025Article
- Knowledge and perception of medical students on genetics in the genomic era.Journal of community genetics · 2025Article
- Prevalence and Factors Associated With Awareness of Precision Medicine Among Individuals With Depression and Anxiety.Cureus · 2024Article
- Patients' and Members of the Public's Wishes Regarding Transparency in the Context of Secondary Use of Health Data: Scoping Review.Journal of medical Internet research · 2023Article
- Public attitudes toward cloud computing and willingness to share personal health records (PHRs) and genome data for health care research in Japan.Human genome variation · 2023Article
- A conceptual analysis of public opinion regarding genome research in Japan.Frontiers in genetics · 2023Article
- How does the genomic naive public perceive whole genomic testing for health purposes? A scoping review.European journal of human genetics : EJHG · 2023Article
- Looking back: three key lessons from 20 years of shaping Japanese genome research regulations.Journal of human genetics · 2021Article
- Genetic discrimination: introducing the Asian perspective to the debate.NPJ genomic medicine · 2021Review
- Global Public Perceptions of Genomic Data Sharing: What Shapes the Willingness to Donate DNA and Health Data?American journal of human genetics · 2020Article
- Increased awareness and decreased acceptance of genome-editing technology: The impact of the Chinese twin babies.PloS one · 2020Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
3 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Japan has been proactively promoting genomic medicine initiatives as national policy. With rapid pace developments in genomic medicine, an increasing number of patients and their families will be able to access genomic information. In such circumstances, a consideration of public interests and an assessment of the general knowledge about genomic research and genomic medicine are becoming imperative. This study aims to elucidate public attitude to the handling of genetic information during research and general medicine. The results of the questionnaire survey of 3000 people have revealed the following points: (1) older participants were likely to have better knowledge of genetic information than younger ones; (2) people with better understanding of genetic information tended to care more strongly about technical issues; (3) respondents with higher literacy regarding genetic issues favored stricter rules for handling of genetic information compared to handling of ordinary medical data; and (4) research community and funding agencies should preserve and develop public trust in genomic research and medicine. These results suggest the importance of education for younger people, the need of different types of explanation and transparency aimed at individuals with different levels of knowledge about the genome, and indicate the adequacy of the current governmental guidelines.
Indexed as
Identifiers
30842598What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.