Evidence map›Paper›PMID 30841861›Full record

ArticleBMC geriatrics2019

My husband is not ill; he has memory loss - caregivers´ perspectives on health care services for persons with dementia.

Randi Granbo, Elisabeth Boulton, Ingvild Saltvedt, Jorunn L Helbostad, Kristin Taraldsen

Open access · goldAbstract read
In one paragraph

Article in BMC geriatrics, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 12 papers.

0numbers the graph read from it
0cells of the map it votes in
12citing papers in PubMed
2.3field-weighted citation impact, top 13% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

12 citing papers in PubMed, 24 citations in OpenAlex.

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  4. The transition of care from farm-based daycare for people with dementia: The perspective of next of kin.International journal of qualitative studies on health and well-being · 2023
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors at 2 institutions in 2 countries.

Randi GranboDepartment of Neuromedicine and Movement Science, Faculty of Medicine and Health Science, NTNU, 7491, Trondheim, Norway.
Elisabeth BoultonSchool of Health Sciences, Faculty of Biology, Medicine and Health, University of Manchester, Oxford Road, Manchester, M13 9PL, UK.
Ingvild SaltvedtDepartment of Neuromedicine and Movement Science, Faculty of Medicine and Health Science, NTNU, 7491, Trondheim, Norway.
Jorunn L HelbostadDepartment of Neuromedicine and Movement Science, Faculty of Medicine and Health Science, NTNU, 7491, Trondheim, Norway.
Kristin TaraldsenDepartment of Neuromedicine and Movement Science, Faculty of Medicine and Health Science, NTNU, 7491, Trondheim, Norway. kristin.taraldsen@ntnu.no.
Norwegian University of Science and Technology · NOUniversity of Manchester · GB

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundTo explore informal caregivers' perspectives and perceived needs related to health care services/activities for older adults with dementia, in order to understand barriers and facilitators to participation. The study represents a first step, and explores challenges to overcome, in order to design new activities and services adapted to older adults with dementia.

methodsWe used a qualitative approach where eight caregivers of people with a dementia diagnosis were included. We recruited participants from a counselling service centre, for home dwelling people with dementia and their families, in a Norwegian municipality. We transcribed data from two focus group interviews and completed analyses by use of Systematic Text Condensation method.

resultsThe findings indicate that current health care services for people with dementia do not meet the needs of either the people with dementia or their caregivers. The few activities/services offered are characterised by passivity and lack of individual and personalised care. Existing health care services and new activities should consider each individual's resources, interests, and physical function to ensure that both people with dementia and their caregivers want to accept support.

conclusionsTo develop health care services and activities for people with dementia, participation and involvement from both people with dementia and their caregivers is necessary. People with dementia are more than their diagnosis. Future health care providers have to widen their focus and consider the individual person with dementia.

Indexed as

AgedAttitude to HealthCaregiversDementiaFemaleFocus GroupsHome Care ServicesHumansMaleMiddle AgedQualitative ResearchSpousesActivityCaregiverCaregiver burdenDementiaThematic analysis

Identifiers

PMID30841861
PMCPMC6404266
OpenAlexW2926345415

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.