ArticleScientific reports2019
Comparison of self-reported and register-based hospital medical data on comorbidities in women.
Article in Scientific reports, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 21 papers, 1 of them a synthesis that pooled it.
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Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
21 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Validity of administrative health data case definitions for identifying polycystic ovary syndrome: a systematic review and meta-analysis.Human reproduction (Oxford, England) · 2025Pooled it
- Development of a case definition for polycystic ovary syndrome using administrative health data: a validation study.BMJ open · 2025Article
- Clusters of Comorbidities in Multiple Sclerosis and Their Influence on Healthcare Resource Usage.European journal of neurology · 2025Observational
- Lifetime Exposure to Violence and Early Cardiometabolic Risk Factors in a Healthy Swedish Cohort.Journal of the American Heart Association · 2025Article
- Excess subsequent fracture and mortality risk after ankle fractures: a relative survival analysis of the 45 and Up Study.Osteoporosis international : a journal established as result of cooperation between the European Foundation for Osteoporosis and the National Osteoporosis Foundation of the USA · 2025Article
- Reliability and Validity of Self-Reported Risk Factors for Stroke and Dementia.Journal of the American Heart Association · 2025Article
- Investigating the association between night eating symptoms and chronotype: the mediating role of depressive symptoms in a sample of Italian university students.Eating and weight disorders : EWD · 2025Article
- Night eating and night eating syndrome: associations with dysfunctional eating behaviors, mental health and quality-of-life measures in Australian adults.Eating and weight disorders : EWD · 2025Article
- Nanopore sequencing-based genotyping suggested an association between CYP2D6 function and susceptibility to anxiety and depression.BMC research notes · 2025Article
- Characterization of the salivary microbiome of adults with inflammatory bowel disease.Journal of oral microbiology · 2025Article
- Disparities in healthcare-seeking behaviors and associated costs between Venezuelan migrants and Colombians residing in Colombia.International journal for equity in health · 2024Article
- Effect of vaccination on COVID-19 mortality during omicron wave among highly marginalized mexican population.Heliyon · 2024Article
- Are medical history data fit for risk stratification of patients with chest pain in emergency care? Comparing data collected from patients using computerized history taking with data documented by physicians in the electronic health record in the CLEOS-CPDS prospective cohort study.Journal of the American Medical Informatics Association : JAMIA · 2024Article
- Inconsistency in UK Biobank Event Definitions From Different Data Sources and Its Impact on Bias and Generalizability: A Case Study of Venous Thromboembolism.American journal of epidemiology · 2024Article
- Association of participants who screened positive for night eating syndrome with physical health, sleep problems, and weight status in an Australian adult population.Eating and weight disorders : EWD · 2023Article
- Comparison of health information exchange data with self-report in measuring cancer screening.BMC medical research methodology · 2023Article
- Genetic Risk Score for Prediction of Coronary Heart Disease in the Korean Genome and Epidemiology Study.Reviews in cardiovascular medicine · 2023Article
- Agreement between self-report and administrative health data on occurrence of non-cancer chronic disease among participants of the BC generations project.Frontiers in epidemiology · 2022Article
- High Comorbidity Burden in Patients with SLE: Data from the Community-Based Lupus Registry of Crete.Journal of clinical medicine · 2021Article
- Article
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Authors and funding
13 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Breast cancer patients commonly present with comorbidities which are known to influence treatment decisions and survival. We aim to examine agreement between self-reported and register-based medical records (National Patient Register [NPR]). Ascertainment of nine conditions, using individually-linked data from 64,961 women enrolled in the Swedish KARolinska MAmmography Project for Risk Prediction of Breast Cancer (KARMA) study. Agreement was assessed using observed proportion of agreement (overall agreement), expected proportion of agreement, and Cohen's Kappa statistic. Two-stage logistic regression models taking into account chance agreement were used to identify potential predictors of overall agreement. High levels of overall agreement (i.e. ≥86.6%) were observed for all conditions. Substantial agreement (Cohen's Kappa) was observed for myocardial infarction (0.74), diabetes (0.71) and stroke (0.64) between self-reported and NPR data. Moderate agreement was observed for preeclampsia (0.51) and hypertension (0.46). Fair agreement was observed for heart failure (0.40) and polycystic ovaries or ovarian cysts (0.27). For hyperlipidemia (0.14) and angina (0.10), slight agreement was observed. In most subgroups we observed negative specific agreement of >90%. There is no clear reference data source for ascertainment of conditions. Negative specific agreement between NPR and self-reported data is consistently high across all conditions.
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