ArticleInternational journal for equity in health2019
Health care equity and access for marginalised young people: a longitudinal qualitative study exploring health system navigation in Australia.
Article in International journal for equity in health, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 42 papers, 3 of them syntheses that pooled it.
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Who cites it
42 citing papers in PubMed, 3 syntheses or guidelines pooled it.
- Disparities in hepatitis B virus healthcare service access among marginalised poor populations: a mixed-method systematic review.Infectious diseases of poverty · 2024Pooled it
- Enablers and barriers to primary health care access for Indigenous adolescents: a systematic review and meta-aggregation of studies across Australia, Canada, New Zealand, and USA.BMC health services research · 2024Pooled it
- A model explaining refugee experiences of the Australian healthcare system: a systematic review of refugee perceptions.BMC international health and human rights · 2019Pooled it
- Genres and typologies of standard paediatric service public funding model provisions for speech-language pathology management: A scoping review.Health policy OPEN · 2026Article
- Multidisciplinary Telehealth for Pediatric Developmental and Mental Health Care in Rural and Remote Australia: Interview Study Among Caregivers and Service Providers.JMIR pediatrics and parenting · 2026Article
- Patterns, motivations, and healthcare experiences of medical cannabis use among gender and sexuality diverse people in Australia: findings from the Cannabis as Medicine Survey 2022 (CAMS-22).Harm reduction journal · 2026Article
- Ngalaiya Boorai Gabara Budbut: A Qualitative Study With Primary Care Providers to Understand Perceived Needs, Enablers, Barriers and Opportunities to Strengthen Care.The Medical journal of Australia · 2026Article
- Including the excluded: an evaluation of a sexual health promotion capacity building intervention among specialist homelessness services in New South Wales.International journal for equity in health · 2026Article
- Assessing the Capability of Large Language Models for Navigation of the Australian Health Care System: Comparative Study.JMIR AI · 2025Article
- Spatial distribution and determinants of health care access barriers among female Pakistan youths: spatial and multilevel regression analysis.BMC health services research · 2025Article
- The Ways of Using Social Media for Health Promotion Among Adolescents: Qualitative Interview and Focus Group Study.Journal of medical Internet research · 2025Article
- Recommendations for promoting affirming healthcare for gender and sexual minorities with intersecting marginalized identities.BMC health services research · 2025Article
- Using Social Media to Promote Life Skills Among Adolescents: A Debate on Opportunities, Challenges, and Implications for Health and Education.Journal of prevention (2022) · 2025Article
- Perceptions and Acceptability of Doxycycline-Based STI Prophylaxis: Insights from Consumers and Healthcare Providers in Queensland.International journal of sexual health : official journal of the World Association for Sexual Health · 2025Article
- Identifying Facilitators and Barriers to Neonatal Intensive Care Unit Visitation in Mothers of Low Socioeconomic Status: A Qualitative Investigation.Children (Basel, Switzerland) · 2024Article
- Article
- A scoping review on the barriers to and facilitators of health services utilisation related to refugee settlement in regional or rural areas of the host country.BMC public health · 2024Article
- Help-seeking for young rural males disengaged from education.Australian journal of psychology · 2024Article
- Co-production of an online research and resource platform for improving the health of young people-The hype project.PloS one · 2024Article
- Interventions connecting young people living in Africa to healthcare; a systematic review using the RE-AIM framework.Frontiers in health services · 2024Review
Corrections and comments
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Authors and funding
9 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundYoung people have unique social, emotional and developmental needs that require a welcoming and responsive health system, and policies that support their access to health care. Those who are socially or culturally marginalised may face additional challenges in navigating health care, contributing to health inequity. The aim of this study was to understand health system navigation, including the role of technology, for young people belonging to one or more marginalised groups, in order to inform youth health policy in New South Wales, Australia.
methodsThis qualitative longitudinal study involved 2-4 interviews each over 6 to 12 months with marginalised young people aged 12-24 years living in NSW. The analysis used Nvivo software and grounded theory.
resultsWe interviewed 41 young people at baseline who were living in rural or remote areas, sexuality and/or gender diverse, refugee, homeless, and/or Aboriginal. A retention rate of over 85% was achieved. Nineteen belonged to more than one marginalised group allowing an exploration of intersectionality. General practitioners (family physicians) were the most commonly accessed service throughout the study period. Participants were ambivalent about their healthcare journeys. Qualitative analysis identified five themes: 1. Technology brings opportunities to understand, connect and engage with services 2. Healthcare journeys are shaped by decisions weighing up convenience, engagement, effectiveness and affordability. 3. Marginalised young people perceive and experience multiple forms of discrimination leading to forgone care. 4. Multiple marginalisation makes health system navigation more challenging 5. The impact of health system complexity and fragmentation may be mitigated by system knowledge and navigation support
conclusionsThe compounding effects of multiple discrimination and access barriers were experienced more strongly for young people belonging to mutiple marginalised groups. We identify several areas for improving clinical practice and policy. Integrating technology and social media into processes that facilitate access and navigation, providing respectful and welcoming services that recognise diversity, improving health literacy and involving professionals in advocacy and navigation support may help to address these issues.
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