ArticleJournal of pain and symptom management2019
Patient Patterns and Perspectives on Using Opioid Regimens for Chronic Cancer Pain.
Article in Journal of pain and symptom management, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 17 papers.
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The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
17 citing papers in PubMed, 37 citations in OpenAlex.
- MyPainPal, a Novel mHealth App to Improve Pain in Patients With Advanced Cancer: Single-Arm Pilot Study.JMIR cancer · 2025Trial
- Development and pre-pilot testing of STAMP + CBT: an mHealth app combining pain cognitive behavioral therapy and opioid support for patients with advanced cancer and pain.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2024Trial
- The impact of opioid stigma on patient-provider interaction and decision-making in cancer pain management: a qualitative meta-synthesis.BMC palliative care · 2026Article
- Pilot Testing of a Multicomponent Cancer Pain-Cognitive Behavioral Therapy mHealth App for Patients With Advanced Cancer.JCO clinical cancer informatics · 2025Article
- "I don't tell anyone I have them:" Experiences with opioid stigma from the perspective of survivors living with chronic cancer-related pain and clinicians that care for them.The journal of pain · 2025Article
- [Factors influencing analgesic use patterns in patients with chronic tumor-associated pain. : A qualitative pilot study considering different groups of medications].Schmerz (Berlin, Germany) · 2024Article
- Perceptions of prescription opioids among marginalized patients with hematologic malignancies in the context of the opioid epidemic: a qualitative study.Journal of cancer survivorship : research and practice · 2024Article
- Pain coping, multidisciplinary care, and mHealth: Patients' views on managing advanced cancer pain.Psycho-oncology · 2024Article
- Electronic Real-Time Monitoring Reveals Limited Adherence to Long-Term Opioid Prescriptions in Pain Patients.Journal of pain research · 2024Article
- Virtual reality-guided mindfulness for chronic pain in cancer survivors: protocol for the virtual mind study-a single-group feasibility trial.Frontiers in pain research (Lausanne, Switzerland) · 2024Article
- Top Ten Tips Palliative Care Clinicians Should Know About Behavioral Pain Management for Persistent Pain.Journal of palliative medicine · 2023Review
- Fentanyl in cancer pain management: avoiding hasty judgments and discerning its potential benefits.Drugs in context · 2023Review
- When can cancer patient treatment nonadherence be considered intentional or unintentional? A scoping review.PloS one · 2023Article
- Unacceptable pain in oncology: The patients' perspective on reasons for absence of pain interventions.European journal of cancer care · 2022Article
- Opioid Use at End-Of-Life Among Nova Scotia Patients With Cancer.Frontiers in pharmacology · 2022Article
- Leveraging mobile health technology and research methodology to optimize patient education and self-management support for advanced cancer pain.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2021Article
- Gaps in the Use of Long-Acting Opioids Within Intervals of Consecutive Days Among Cancer Outpatients Using Electronic Pill Caps.Pain medicine (Malden, Mass.) · 2021Observational
Corrections and comments
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Authors and funding
9 authors at 5 institutions in 1 country.
Funding
Abstract
contextWith increasing attention to the undertreatment of cancer pain in parallel with concerns about opioid misuse, little is known about how patients with advanced cancer adhere to opioid regimens for chronic cancer pain.
objectivesWe explored patient approaches to managing chronic cancer pain with long-acting opioids.
methodsIn a multimethods study at an academic medical center, adult patients with chronic cancer pain (n = 17) used electronic pill caps to record adherence to prescribed long-acting opioid regimens. After eight weeks, patients viewed their adherence records and completed a semistructured interview about their opioid use. With a framework approach, we coded interview data (Kappa >0.95) and identified themes in how patients perceived and used opioids to manage cancer pain.
resultsPatients (59% female; 94% non-Hispanic white; median age = 65 years) felt grateful about pain benefit from opioids yet concerned about opioid side effects and addiction/tolerance. Main reasons for nonadherence included both intentional decisions (e.g., skipping doses) and unintentional barriers (e.g., missing doses due to inconsistent sleep schedules). Overall, patients set their own opioid adherence goals and developed routines to achieve them. Residual pain varied and was not consistently linked with opioid adherence.
conclusionPatients commonly felt conflicted about using prescribed long-acting opioids to manage cancer pain due to concurrent perceptions of their risks and benefits, and they set their own parameters for opioid-taking practices. Intentional and unintentional deviations from prescribed opioid schedules highlight the need to enhance adherence communication, education, and counseling, to optimize the use of long-acting opioids as a component of cancer pain management.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.