ArticleSouthern medical journal2019
Lessons Learned from Building a Pediatric-to-Adult Sickle Cell Transition Program.
Article in Southern medical journal, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 13 papers, 1 of them a synthesis that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
13 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Self-management interventions for children and young people with sickle cell disease: A systematic review.Health expectations : an international journal of public participation in health care and health policy · 2023Pooled it
- Mechanism-informed transition from pediatric to adult care in sickle cell disease: a case study.BMC health services research · 2026Article
- Health self-management programs for adolescents and young adults with chronic medical condition transitioning from pediatric to adult care: a scoping review.European journal of pediatrics · 2025Article
- A mixed methods study to understand the role of knowledge in transition among youth with sickle cell disease.Blood advances · 2025Article
- Community health workers supporting emerging adults with sickle cell disease.Health care transitions · 2025Article
- Perceived transition readiness among adolescents and young adults with neurofibromatosis type 1 and plexiform neurofibromas: a cross-sectional descriptive study.Journal of pediatric psychology · 2024Article
- Training young adults as community health workers specializing in pediatric to adult health care transition to support emerging adults with sickle cell disease.Health care transitions · 2024Article
- Sickle cell disease and adolescents' perspectives on self-care management resources.Health care transitions · 2023Article
- Pediatric-Adult Care Transition: Perceptions of Adolescent and Young Adult Patients with Sickle Cell Disease and Their Healthcare Providers.Patient preference and adherence · 2022Article
- A scoping review of transition interventions for young adults with sickle cell disease.Pediatric blood & cancer · 2021Article
- Implementing a Transition Program from Paediatric to Adult Services in Phenylketonuria: Results After Two Years of Follow-Up with an Adult Team.Nutrients · 2021Observational
- Patient and parent perspectives on transition from paediatric to adult healthcare in rheumatic diseases: an interview study.BMJ open · 2021Article
- A program of transition to adult care for sickle cell disease.Hematology. American Society of Hematology. Education Program · 2019Review
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Authors and funding
9 authors.
Funding
Abstract
objectiveMore effective transitions and transfers of young people with sickle cell disease (SCD) into the adult healthcare setting is a focus of both primary care and specialty care medical organizations. Effective transition and transfer requires six core elements: establishing a policy, tracking progress, administering transition readiness assessments, planning for adult care, transferring to adult care, and integrating into an adult practice. We developed a program using these six core elements. The objective of our report was to assess the development and implementation of this program.
methodsWe used the six core elements to develop and implement a program at Virginia Commonwealth University for children and adolescents with SCD to transition to adult health care.
resultsWe assessed individuals' differences by age and grade, their independent living skills, their feelings about moving to adult care; tallied and analyzed several assessment scales; and assessed transfer success and patient retention.
conclusionsThe principles and lessons we learned in developing and implementing this program over 5 years, accompanied by caring, flexible, and dedicated care team members, often can overcome even severe barriers to care transitions.
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