ReviewJournal of clinical and translational science2018
Transition to adulthood and adult health care for patients with sickle cell disease or cystic fibrosis: Current practices and research priorities.
Review in Journal of clinical and translational science, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 20 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
20 citing papers in PubMed, 45 citations in OpenAlex.
- Primary Ciliary Dyskinesia: A Suggested Pathway to Transition From Pediatric to Adult Care.Pediatric pulmonology · 2026Review
- Transition and clinical outcomes among AYA with sickle cell disease.Health care transitions · 2026Article
- Improving Health Care Transition for Young Patients With Sickle Cell Disease Through Quality Network.JAMA network open · 2025Observational
- Gaps during pediatric to adult care transfer escalate acute resource utilization in sickle cell disease.Blood advances · 2024Article
- How young adults with sickle cell disease define "being a good patient" in the adult healthcare system.Pediatric blood & cancer · 2024Article
- Initial outcomes in a sickle cell disease transition clinic.Health care transitions · 2024Article
- Disparities exist among US adolescents in the receipt of transition to adult healthcare services: the differential impact of social determinants of health, healthcare needs, and COVID-19.Frontiers in public health · 2024Article
- Healthcare transition readiness of families of youth with cystic fibrosis during COVID-19: A correlational multicenter analysis.Health care transitions · 2024Article
- Contraception, pregnancy, and STI counseling and care among transitioning young adults with sickle cell disease.Blood advances · 2023Article
- Concern over tobacco and marijuana perceptions and use among adolescents and young adults with cystic fibrosis.Addictive behaviors · 2023Article
- Navigating liminal spaces together: a qualitative metasynthesis of youth and parent experiences of healthcare transition.Journal of transition medicine · 2023Review
- Educational Initiative to Increase Knowledge for Transition to Adult Care in Adolescents With Cystic Fibrosis.The journal of pediatric pharmacology and therapeutics : JPPT : the official journal of PPAG · 2023Article
- The diagnosis communication process in spinal muscular atrophy: A cross-cutting view of the new challenges facing the therapeutic era.Genetics in medicine open · 2023Review
- Perceptions of caregivers and adolescents/young adults with cystic fibrosis regarding health care transition readiness during the COVID-19 pandemic: A qualitative study.Health care transitions · 2023Article
- Transition in Sickle Cell Disease (SCD): A German Consensus Recommendation.Journal of personalized medicine · 2022Article
- Sickle Cell Disease in Children and Adolescents: A Review of the Historical, Clinical, and Public Health Perspective of Sub-Saharan Africa and Beyond.International journal of pediatrics · 2022Review
- Burden of disease and clinical targets in adult patients with X-linked hypophosphatemia. A comprehensive review.Osteoporosis international : a journal established as result of cooperation between the European Foundation for Osteoporosis and the National Osteoporosis Foundation of the USA · 2021Review
- Transition care continuity promotes long-term retention in adult care among young adults with sickle cell disease.Pediatric blood & cancer · 2021Article
- Moving up: Healthcare transition experiences of adolescents and young adults with cystic fibrosis.Journal of pediatric nursingArticle
- Cough in adolescent with cystic fibrosis, from nightmare to COVID-19 stigma: A qualitative thematic analysis.Journal of pediatric nursingArticle
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
6 authors at 5 institutions in 1 country.
Funding
Abstract
introductionA growing population of adults living with severe, chronic childhood-onset health conditions has created a need for specialized health care delivered by providers who have expertise both in adult medicine and in those conditions. Optimal care of these patients requires systematic approaches to healthcare transition (HCT). Guidelines for HCT exist, but gaps in care occur, and there are limited data on outcomes of HCT processes.
methodsThe Single Disease Workgroup of the Lifespan Domain Task Force of the National Center for Advancing Translational Sciences Clinical and Translational Science Award programs convened a group to review the current state of HCT and to identify gaps in research and practice. Using cystic fibrosis and sickle cell disease as models, key themes were developed. A literature search identified general and disease-specific articles. We summarized key findings.
resultsWe identified literature characterizing patient, parent and healthcare provider perspectives, recommendations for transition care, and barriers to effective transition.
conclusionsWith increased survival of patients with severe childhood onset diseases, ongoing study of effective transition practices is essential as survival increases for severe childhood onset diseases. We propose pragmatic methods to enhance transition research to improve health and key outcomes.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.