ArticleJournal of clinical and translational science2018
Sustainability considerations for clinical and translational research informatics infrastructure.
Article in Journal of clinical and translational science, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 16 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
16 citing papers in PubMed.
- Article
- A method to enable clinical and translational research teams with custom real-world data from electronic health record systems.Journal of clinical and translational science · 2026Article
- Leadership, Informatics Expertise, and Resources: Determinants of Institutional Data Sharing in the National Clinical Cohort Collaborative (N3C).AMIA Joint Summits on Translational Science proceedings. AMIA Joint Summits on Translational Science · 2026Article
- Understanding enterprise data warehouses to support clinical and translational research: impact, sustainability, demand management, and accessibility.Journal of the American Medical Informatics Association : JAMIA · 2024Article
- Advancing maturity modeling for precision oncology.Journal of clinical and translational science · 2024Article
- Clinical Data Warehousing: A Scoping Review.Journal of the Society for Clinical Data Management · 2024Article
- Integrating real-world data from Brazil and Pakistan into the OMOP common data model and standardized health analytics framework to characterize COVID-19 in the Global South.Journal of the American Medical Informatics Association : JAMIA · 2023Article
- The OneFlorida Data Trust: a centralized, translational research data infrastructure of statewide scope.Journal of the American Medical Informatics Association : JAMIA · 2022Article
- Establishing a research informatics program in a public healthcare system: a case report with model documents.Journal of the American Medical Informatics Association : JAMIA · 2022Article
- Economical Utilization of Health Information with Learning Healthcare System Data Commons.Perspectives in health information managemen · 2022Article
- Article
- Research Integrated Network of Systems (RINS): a virtual data warehouse for the acceleration of translational research.Journal of the American Medical Informatics Association : JAMIA · 2021Article
- Understanding enterprise data warehouses to support clinical and translational research.Journal of the American Medical Informatics Association : JAMIA · 2020Article
- Dissemination and continuous improvement of a CTSA-based software platform, SPARCRequestJournal of clinical and translational science · 2019Article
- Research IT maturity models for academic health centers: Early development and initial evaluation.Journal of clinical and translational science · 2018Article
- Lessons Learned from the Medical University of South Carolina Transdisciplinary Collaborative Center (TCC) in Precision Medicine and Minority Men's Health.American journal of men's healthArticle
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
13 authors.
Funding
Abstract
A robust biomedical informatics infrastructure is essential for academic health centers engaged in translational research. There are no templates for what such an infrastructure encompasses or how it is funded. An informatics workgroup within the Clinical and Translational Science Awards network conducted an analysis to identify the scope, governance, and funding of this infrastructure. After we identified the essential components of an informatics infrastructure, we surveyed informatics leaders at network institutions about the governance and sustainability of the different components. Results from 42 survey respondents showed significant variations in governance and sustainability; however, some trends also emerged. Core informatics components such as electronic data capture systems, electronic health records data repositories, and related tools had mixed models of funding including, fee-for-service, extramural grants, and institutional support. Several key components such as regulatory systems (e.g., electronic Institutional Review Board [IRB] systems, grants, and contracts), security systems, data warehouses, and clinical trials management systems were overwhelmingly supported as institutional infrastructure. The findings highlighted in this report are worth noting for academic health centers and funding agencies involved in planning current and future informatics infrastructure, which provides the foundation for a robust, data-driven clinical and translational research program.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.