ArticleResearch involvement and engagement2019
'What can I do that will most help researchers?' A different approach to training the public at the start of their involvement in research.
Article in Research involvement and engagement, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 22 papers.
What it found
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The trial behind it
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Who cites it
22 citing papers in PubMed.
- Expertise or representation: What gives people with lived experience authority and legitimacy in involvement in research?Research involvement and engagement · 2026Article
- Development of a Patient and Carer Advisory Board to Co-Design Health Services Research for the Quality of Care of People With Dementia.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- Evaluation of a 'Research Methods' Training Course for Novice Lived Experience Researchers.Health expectations : an international journal of public participation in health care and health policy · 2025Article
- Exploring the implementation of a data trust committee: a qualitative evaluation of processes and practices.Research involvement and engagement · 2025Article
- Attitudes and perceptions regarding knowledge translation and community engagement in medical research: the PERSPECT qualitative study.Health research policy and systems · 2025Article
- Training and peer-group coaching for pairs of researchers and patient representatives to support continuous two-way learning.Research involvement and engagement · 2024Article
- Patient and public involvement in preclinical and medical research: Evaluation of an established programme in a Discovery-Based Medical Research Institute.Health expectations : an international journal of public participation in health care and health policy · 2024Article
- Collaborative evaluation of a pilot involvement opportunity: Cochrane Common Mental Disorders Voice of Experience College.Health expectations : an international journal of public participation in health care and health policy · 2023Article
- Storytelling for impact: the creation of a storytelling program for patient partners in research.Research involvement and engagement · 2023Article
- Patient and public involvement in cancer research: A scoping review.Cancer medicine · 2023Article
- Research Buddy partnership in a MD-PhD program: lessons learned.Research involvement and engagement · 2023Article
- Different in so many ways: Exploring consumer, health service staff, and academic partnerships in a research advisory group through rapid ethnography.Australian occupational therapy journal · 2022Article
- Tracking involvement over time: a longitudinal study of experiences among refugee parents involved as public contributors in health research.International journal of qualitative studies on health and well-being · 2022Article
- The role of patient and public involvement in rapid qualitative studies: Can we carry out meaningful PPIE with time pressures?Research involvement and engagement · 2022Article
- 'Getting involved in research': a co-created, co-delivered and co-analysed course for those with lived experience of health and social care services.Research involvement and engagement · 2022Article
- Research as an essentiality beyond one's own competence: an interview study on frail older people's view of research.Research involvement and engagement · 2021Article
- The value of involving patients and public in health services research and evaluation: a qualitative study.Research involvement and engagement · 2021Article
- More than a method: trusting relationships, productive tensions, and two-way learning as mechanisms of authentic co-production.Research involvement and engagement · 2021Article
- 'I felt like a human being'-An exploratory, multi-method study of refugee involvement in the development of mental health intervention research.Health expectations : an international journal of public participation in health care and health policy · 2021Article
- Patient and Public Involvement for Dementia Research in Low- and Middle-Income Countries: Developing Capacity and Capability in South Asia.Frontiers in neurology · 2021Article
Corrections and comments
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Authors and funding
4 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
For patients and the public to work collaboratively with researchers, they need support and opportunities to engage in learning that builds on their skills and grows their confidence. In this article, we argue for a different approach to this learning, which starts with the expertise patients/ the public arrive with, and helps them identify and develop the soft skills required to influence researchers effectively. Much of the current training for patients and the public focuses on addressing the gaps in their knowledge and awareness about how research works and how public involvement adds value. Our training complements this by exploring the concept of 'experiential knowledge' in more depth. Patients and the public possess experiential knowledge (knowledge gained through lived experience) that researchers may not have. In the training we explore the nature of this expertise and other skills that patients/ the public bring, as well as how to identify who has the most relevant experiential knowledge in any given situation, and how best to share experiential knowledge to benefit researchers and maximise the impact of involvement. We co-produced this training with a patient member of the project team, and through feedback from patients and carers in an initial pilot. Our approach adds another dimension to preparing people for involvement and in particular for taking part in conversations with researchers that support mutual learning. We suggest this approach should be supported by separate, mirror training for researchers, that also develops their soft skills in preparation for learning from involvement.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.