Evidence map›Paper›PMID 30821924›Full record

ArticleArthritis care & research2020

Qualitative Study of Treatment Preferences for Rheumatoid Arthritis and Pharmacotherapy Acceptance: Indigenous Patient Perspectives.

Adalberto Loyola-Sanchez, Glen Hazlewood, Lynden Crowshoe, Tessa Linkert, Pauline M Hull, Deborah Marshall, Cheryl Barnabe

Registry-linked trialOpen access · hybridAbstract read
In one paragraph

Article in Arthritis care & research, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT05790356 (Fecal Microbial Transplantation for Rheumatoid Arthritis Trial), which is not on this map. Cited by 16 papers, 2 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
16citing papers in PubMed, 2 pooled it
2.9field-weighted citation impact, top 9% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT05790356 narecruitingnot on this mapstarted 2023, after this paper: background citation

Fecal Microbial Transplantation for Rheumatoid Arthritis Trial

TypeinterventionalSponsorLondon Health Sciences Centre Research Institute OR Lawson Research Institute of St. Joseph'sRan2023 to 2026Enrolled30ConditionsArthritis, Arthritis, Rheumatoid, Fecal Microbiota TransplantationArmsFecal Microbial transplant, Placebo capsules
3 · Its place in the literature

Who cites it

16 citing papers in PubMed, 2 syntheses or guidelines pooled it, 28 citations in OpenAlex.

  1. Pooled it
  2. Pooled it
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  7. Review
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  9. Physical pain among Indigenous Peoples in Canada: a scoping review.Canadian journal of anaesthesia = Journal canadien d'anesthesie · 2023
    Article
  10. Review
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  16. Realizing the Potential of the Patient Perspective.Patient preference and adherence · 2020
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors at 2 institutions in 1 country.

Adalberto Loyola-SanchezUniversity of Alberta, Edmonton, Alberta, Canada.
Glen HazlewoodCumming School of Medicine, University of Calgary, Calgary, Alberta, Canada.ORCID 0000-0001-7709-3741
Lynden CrowshoeCumming School of Medicine, University of Calgary, Calgary, Alberta, Canada.
Tessa LinkertCumming School of Medicine, University of Calgary, Calgary, Alberta, Canada.
Pauline M HullCumming School of Medicine, University of Calgary, Calgary, Alberta, Canada.
Deborah MarshallCumming School of Medicine, University of Calgary, Calgary, Alberta, Canada.
Cheryl BarnabeCumming School of Medicine, University of Calgary, Calgary, Alberta, Canada.ORCID 0000-0003-3761-237X
University of Calgary · CAUniversity of Alberta · CA

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

objectiveTo explore patient preferences that influence decision-making in the management of rheumatoid arthritis (RA) by indigenous patients living in southern Alberta, Canada.

methodsWe conducted a qualitative narrative-based study within a social constructivist framework. Thirteen in-depth interviews with indigenous patients with RA who had attended 1 of 3 rheumatology practices in southern Alberta (1 rural and 2 urban) were completed. Codes generated through 2 phases of analysis were condensed into main themes, triangulated, and used to produce theoretical statements.

resultsPatients preferred to use a combination of nonpharmacologic and pharmacologic treatments to manage their RA. Nonpharmacologic treatments included physical, mental, emotional, and spiritual strategies. Patients' preferences for taking medications varied and were influenced by factors that were clinical (i.e., trust in health providers and understanding drugs' mechanisms of action, benefits, harms, and administration burden), familial (i.e., support), and societal (i.e., access to medications and stigmatization of drug dependency).

conclusionIndigenous patients apply a holistic approach to the nonpharmacologic management of RA. Increases in preferences for RA medications could be supported through enhanced communication strategies to increase patient understanding of medication effects and health provider recognition of societal and familial influences on patient decisions. A patient-provider relationship based on trust was fundamental to reaching mutual understanding and should be fostered by models of practice that promote cultural safety, empathy, compassion, openness, acknowledgment, and respect of cultural differences.

Indexed as

Patient Acceptance of Health CarePatient PreferenceAdultAgedAntirheumatic AgentsArthritis, RheumatoidDecision MakingFemaleHumansIndigenous PeoplesMaleMiddle AgedProfessional-Patient RelationsQualitative ResearchRheumatologyAntirheumatic Agents

Identifiers

PMID30821924
PMCPMC7187260
OpenAlexW2920747120

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC
Read underepoch 390

Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.