Evidence map›Paper›PMID 30820037›Full record

Trial reportEuropean journal of human genetics : EJHG2019

Educational delay and attainment in persons with neurofibromatosis 1 in Denmark.

Karoline Doser, Line Kenborg, Elisabeth Wreford Andersen, Pernille Envold Bidstrup, Anja Kroyer, Hanne Hove, John Østergaard, Sven Asger Sørensen, Christoffer Johansen, John Mulvihill and 2 more

Erratum issuedAbstract readRandomized Controlled Trial
In one paragraph

Trial report in European journal of human genetics : EJHG, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. An erratum has been issued. Cited by 11 papers.

0numbers the graph read from it
0cells of the map it votes in
11citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

11 citing papers in PubMed.

  1. Article
  2. Article
  3. Article
  4. Review
  5. Article
  6. Article
  7. Article
  8. Article
  9. Cutaneous Expression of Familial Cancer Syndromes.Acta dermato-venereologica · 2021
    Review
  10. Article
  11. Article
4 · The record

Corrections and comments

5 · Who and what money

Authors and funding

12 authors.

Karoline DoserSurvivorship Unit, Danish Cancer Society Research Center, Copenhagen, Denmark. kdoser@cancer.dk.
Line KenborgChildhood Cancer Research Group, Danish Cancer Society Research Center, Copenhagen, Denmark.
Elisabeth Wreford AndersenSurvivorship Unit, Danish Cancer Society Research Center, Copenhagen, Denmark.
Pernille Envold BidstrupSurvivorship Unit, Danish Cancer Society Research Center, Copenhagen, Denmark.
Anja KroyerChildhood Cancer Research Group, Danish Cancer Society Research Center, Copenhagen, Denmark.
Hanne HoveThe RAREDIS Database, Centre for Rare Diseases, Copenhagen University Hospital and Aarhus University, Aarhus, Denmark.
John ØstergaardCenter for Rare Disease, Aarhus University Hospital, Aarhus, Denmark.
Sven Asger SørensenCopenhagen University, Copenhagen, Denmark.
Christoffer JohansenSurvivorship Unit, Danish Cancer Society Research Center, Copenhagen, Denmark.
John MulvihillUniversity of Oklahoma Health Sciences Center, Oklahoma City, OK, USA.
Jeanette Falck WintherChildhood Cancer Research Group, Danish Cancer Society Research Center, Copenhagen, Denmark.
Susanne Oksbjerg DaltonSurvivorship Unit, Danish Cancer Society Research Center, Copenhagen, Denmark.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Most research on psychosocial consequences of neurofibromatosis type 1 (NF1) has focused on the relationship between disease factors and cognitive functioning. NF1 may impair domains of learning and attention, resulting in low academic performance. This study is the first nationwide population-based cohort study to investigate educational attainment and delay in completing mandatory school by persons with NF1. Educational information was collected from 550 persons at the age of 30 (born 1965-1984). They were diagnosed with NF1 in Denmark and compared to a cohort of NF1-free persons matched on gender and age (n = 4295). Multinomial logistic models were applied to estimate odds ratios (ORs) for obtaining short (≤9 years) or medium (10-12 years) education compared to long education (>12 years) by the age of 30 years. We calculated the probability of graduating 9

Indexed as

CognitionEducationNeurofibromatosis 1RegistriesSchoolsAdolescentAdultChildCohort StudiesDenmarkFemaleHumansMaleMiddle Aged

Identifiers

PMID30820037
PMCPMC6777448

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.