ArticleERJ open research2019
Everyday life experiences of spouses of patients who suffer from pulmonary arterial hypertension or chronic thromboembolic pulmonary hypertension.
Article in ERJ open research, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 12 papers.
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Who cites it
12 citing papers in PubMed.
- Socioeconomic Burden of Pulmonary Arterial Hypertension in Patients and Caregivers: A Canadian Cross-Sectional Study.CJC open · 2026Article
- Unravelling typology of family life when a parent has heart disease: A qualitative study of families with adolescents.International journal of nursing studies advances · 2025Article
- Article
- Young Spouses' Experiences of Having a Partner With Heart Disease and Adolescents Living at Home.Health expectations : an international journal of public participation in health care and health policy · 2024Article
- Change in health-related quality of life at early follow-up in patients with pulmonary arterial hypertension and chronic thromboembolic pulmonary hypertension.Pulmonary circulation · 2024Article
- Examining the impact of pulmonary hypertension on nonprofessional caregivers: A mixed-methods systematic review.Pulmonary circulation · 2022Review
- A model for estimating the health economic impact of earlier diagnosis of chronic thromboembolic pulmonary hypertension.ERJ open research · 2021Article
- Adherence to disease-specific drug treatment among patients with pulmonary arterial hypertension or chronic thromboembolic pulmonary hypertension.ERJ open research · 2020Article
- Novel Insight into How Nurses Working at PH Specialist Clinics in Sweden Perceive Their Work.Healthcare (Basel, Switzerland) · 2020Article
- A New Normality Illuminated by Past and Present! A Qualitative Study: Experiences and Challenges of Everyday Life in Patients With Advanced Heart or Lung Failure.Global qualitative nursing researchArticle
- Patients' perspectives on the challenges associated with receiving non-oral pulmonary arterial hypertension treatment: a mixed methods study.Therapeutic advances in respiratory diseaseArticle
- The Odyssey from Symptom to Diagnosis of Pulmonary Hypertension from the Patients and Spouses Perspective.Journal of primary care & community healthArticle
Corrections and comments
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Authors and funding
5 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
introductionSpouses play a crucial role, both physically and psychologically, for patients with pulmonary arterial hypertension (PAH) and chronic thromboembolic pulmonary hypertension (CTEPH). Our aim was to investigate the spouse's experiences when living with a partner diagnosed with PAH or CTEPH.
methodsWe used a qualitative interview study design based on open-ended questions analysed using qualitative content analysis.
results14 spouses were interviewed. Two categories that describe spouses' experiences of dealing with everyday life were identified: "Living in an insecure life situation" and "Providing and receiving information and support". The experiences reported by the spouses were that their life situation was insecure, and that they had challenges in providing and receiving information and support. Most spouses also wanted and felt a need to be more involved in the care.
conclusionThe spouses were only partly satisfied with their life situation. To support the spouse's participation, the PAH/CTEPH team should encourage the patient to bring their spouse along, and offer them the opportunity to participate in the contacts with healthcare and provide information on an individual family perspective.
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