Evidence map›Paper›PMID 30815150›Full record

ArticleAMIA ... Annual Symposium proceedings. AMIA Symposium2018

The need for guidance and consistency in adolescent privacy policies: a survey of CMIOs.

Lauren Wilcox, Marianne Sharko, Matthew Hong, Julie Hollberg, Jessica S Ancker

Open access · greenAbstract read
In one paragraph

Article in AMIA ... Annual Symposium proceedings. AMIA Symposium, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed
0.9field-weighted citation impact, top 17% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed, 6 citations in OpenAlex.

  1. Article
  2. Article
  3. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors at 3 institutions in 1 country.

Lauren WilcoxGeorgia Tech, Atlanta, GA, USA.
Marianne SharkoWeill Cornell Medical College, New York, NY, USA.
Matthew HongGeorgia Tech, Atlanta, GA, USA.
Julie HollbergEmory Healthcare, Atlanta, GA, USA.
Jessica S AnckerWeill Cornell Medical College, New York, NY, USA.
Cornell University · USGeorgia Institute of Technology · USEmory Healthcare · US

Funding

Improving healthcare quality with user-centric patient portalsK01HS021531 · AHRQ · WEILL MEDICAL COLL OF CORNELL UNIV · PI ANCKER, JESSICA S. · 2013 to 2017
$761k
AHRQ HHS K01 HS021531
6 · The paper itself

Abstract

Research examining whether and how adolescent patients should gain access to their electronic health records is gaining momentum. We conducted a survey to explore diversity in adolescent privacy policies and identify common approaches in health information technology management for adolescent patients. Through descriptive analyses of survey data, we found a wide range of institutional policies regarding adolescent patient privacy, and large variations in health IT executives' baseline knowledge of access policies. A majority of respondents agreed that formal guidelines pertaining to adolescent health record privacy would be helpful. Respondents suggested that these guidelines can be developed through the synthesis of multiple perspectives, including those of pediatricians, adolescent specialists, privacy experts, parents, patient advocates, and other professional entities.

Indexed as

AdolescentConfidentialityElectronic Health RecordsOrganizational PolicyPatient Access to RecordsAdministrative PersonnelChildHealth Care SurveysHumansMedical InformaticsParents

Identifiers

PMID30815150
PMCPMC6371297
OpenAlexW2941365848

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.