Evidence map›Paper›PMID 30813117›Full record

ArticleBMJ open2019

Assessing the readability and patient comprehension of rheumatology medicine information sheets: a cross-sectional Health Literacy Study.

Michael Oliffe, Emma Thompson, Jenny Johnston, Dianne Freeman, Hanish Bagga, Peter K K Wong

Abstract read
In one paragraph

Article in BMJ open, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 35 papers.

0numbers the graph read from it
0cells of the map it votes in
35citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

35 citing papers in PubMed.

  1. Acceptability of a Peer-Led Faith-Based Intervention to Improve Breast, Bowel and Cervical Cancer Screening Uptake Among UK Muslim Women: A Qualitative Evaluation.Health expectations : an international journal of public participation in health care and health policy · 2026
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    Review
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  11. From Insights to Impact: Understanding Cancer Screening Choices through Mixed-Methods.Asian Pacific journal of cancer prevention : APJCP · 2024
    Article
  12. Informed consent in endoscopy: Read, understood, or just signed?iGIE : innovation, investigation and insights · 2024
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  13. The Development and Evaluation of an Educational Video for Breast Cancer Patients Requiring Adjuvant Radiation Therapy.Journal of cancer education : the official journal of the American Association for Cancer Education · 2024
    Article
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Michael OliffeMid-North Coast Arthritis Clinic, Coffs Harbour, New South Wales, Australia.
Emma ThompsonUniversity of New South Wales Rural Clinical School, Coffs Harbour, New South Wales, Australia.
Jenny JohnstonSchool of Education, Southern Cross University, Coffs Harbour, New South Wales, Australia.
Dianne FreemanMid-North Coast Arthritis Clinic, Coffs Harbour, New South Wales, Australia.
Hanish BaggaMid-North Coast Arthritis Clinic, Coffs Harbour, New South Wales, Australia.
Peter K K WongMid-North Coast Arthritis Clinic, Coffs Harbour, New South Wales, Australia.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

objectivesPatients are often provided with medicine information sheets (MIS). However, up to 60% of patients have low health literacy. The recommended readability level for health-related information is ≤grade 8. We sought to assess the readability of MIS given to patients by rheumatologists in Australia, the UK and Canada and to examine Australian patient comprehension of these documents.

designCross-sectional study.

settingCommunity-based regional rheumatology practice.

participantsRandom sample of patients attending the rheumatology practice. OUTCOME MEASURES: Readability of MIS was assessed using readability formulae (Flesch Reading Ease formula, Simple Measure of Gobbledygook scale, FORCAST (named after the authors FORd, CAylor, STicht) and the Gunning Fog scale). Literal comprehension was assessed by asking patients to read various Australian MIS and immediately answer five simple multiple choice questions about the MIS.

resultsThe mean (±SD) grade level for the MIS from Australia, the UK and Canada was 11.6±0.1, 11.8±0.1 and 9.7±0.1 respectively. The Flesch Reading Ease score for the Australian (50.8±0.6) and UK (48.5±1.5) MIS classified the documents as 'fairly difficult' to 'difficult'. The Canadian MIS (66.1±1.0) were classified as 'standard'. The five questions assessing comprehension were correctly answered by 9/21 patients for the adalimumab MIS, 7/11 for the methotrexate MIS, 6/28 for the non-steroidal anti-inflammatory MIS, 10/11 for the prednisone MIS and 13/24 for the abatacept MIS.

conclusionsThe readability of MIS used by rheumatologists in Australia, the UK and Canada exceeds grade 8 level. This may explain why patient literal comprehension of these documents may be poor. Simpler, shorter MIS with pictures and infographics may improve patient comprehension. This may lead to improved medication adherence and better health outcomes.

Indexed as

Health LiteracyPatient Education as TopicAntirheumatic AgentsComprehensionCross-Sectional StudiesEducational StatusFemaleHumansMaleMiddle AgedRheumatic DiseasesAntirheumatic Agentshealth literacymedication adherencepatient comprehensionreadabilityrheumatology

Identifiers

PMID30813117
PMCPMC6377552

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LicenceCC BY-NC
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.