SynthesisPsycho-oncology2019
Conceptual framework for living with and beyond cancer: A systematic review and narrative synthesis.
Synthesis in Psycho-oncology, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 19 papers, 2 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
19 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- Exploring the experiences of women living with metastatic breast cancer [MBC]: A systematic review of qualitative evidence.PloS one · 2024Pooled it
- Conceptual framework for living with and beyond cancer: A systematic review and narrative synthesis.Psycho-oncology · 2019Pooled it
- "…it is not the sickness itself that kills. It is the emotional trauma": a qualitative study of the lived experience and systemic barriers of women with breast cancer in Nigeria.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2026Article
- Symptom experiences of cancer-related cognitive impairment in women with ovarian cancer.BMC women's health · 2025Article
- Review
- 'Picking up the pieces': primary care practitioners' experiences of cancer care reviews. A descriptive qualitative study.BJGP open · 2025Article
- Exploring Healthcare Provider Experiences with the EXCEL Exercise Referral Pathway for Individuals Living with and Beyond Cancer.Current oncology (Toronto, Ont.) · 2025Article
- Application of a revised model for coping with advanced cancer to qualitatively explore lung cancer survivors' experiences of ongoing physical effects, novel treatments, uncertainty, and coping.Journal of cancer survivorship : research and practice · 2024Article
- Improving the provision of emotional support for patients following major lower limb amputation.BMJ open quality · 2024Article
- A Patient-Centered Conceptual Model of AYA Cancer Survivorship Care Informed by a Qualitative Interview Study.Cancers · 2024Article
- The Traces of Cancer: A Metaphorical Understanding of the Experiences of Women Living Beyond Breast Cancer.Qualitative health research · 2024Article
- A Better Me? An Interpretative Phenomenological Analysis of the Experiences of Female Cancer Survivors' Heightened Preoccupation With 'Healthy Eating'.Qualitative health research · 2024Article
- Does the Canadian Occupational Performance Measure (COPM) Capture the Complex Experiences of Cancer Survivors? A Mixed Methods Approach.Occupational therapy in health care · 2024Article
- Improving personalised care and support planning for people living with treatable-but-not-curable cancer.BMJ open quality · 2023Article
- Prehabilitation in the lung cancer pathway: a scoping review.BMC cancer · 2023Article
- Article
- Art-Based Workshops for Women: An Opportunity for Reflection on Identity and Transformation following Cancer Treatment.Occupational therapy international · 2023Article
- Coping With the Emotional Impact of Working in Cancer Care: The Importance of Team Working and Collective Processing.Frontiers in psychology · 2022Review
- The use of CAM products, practices, and practitioners by long-term endometrial cancer survivors in Australia.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2020Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
6 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectiveThe concept of living with and beyond cancer is now emerging in policy and literature. Rather than viewing this notion simply as a linear timeline, developing an agreed understanding of the lived experience of people affected by cancer will aid the development of person-centred models of care.
methodsA systematic review was conducted. The review question was "What does the term 'living with and beyond cancer' mean to people affected by cancer?" The protocol for the review was preregistered in the PROSPERO database (PROSPERO CRD42017059860). All included studies were qualitative, so narrative synthesis was used to integrate descriptions and definitions of living with and beyond cancer into an empirically based conceptual framework.
resultsOut of 2345 papers that were identified and 180 that were reviewed, a total of 73 papers were included. The synthesis yielded three interlinked themes: Adversity (realising cancer), Restoration (readjusting life with cancer), and Compatibility (reconciling cancer), resulting in the ARC framework.
conclusionsThree themes describe the experience of living with and beyond cancer: adversity, restoration, and compatibility. The ARC framework provides an empirically informed grounding for future research and practice in supportive cancer care for this population.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.