Evidence map›Paper›PMID 30807620›Full record

ArticleBMC proceedings2018

Proceedings of the 3rd BEAT-PCD Conference and 4th PCD Training School.

Hannah Farley, Bruna Rubbo, Zuzanna Bukowy-Bieryllo, Mahmoud Fassad, Myrofora Goutaki, Katharine Harman, Claire Hogg, Claudia E Kuehni, Susana Lopes, Kim G Nielsen and 8 more

Open access · goldAbstract readCase Reports
In one paragraph

Article in BMC proceedings, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 7 papers.

0numbers the graph read from it
0cells of the map it votes in
7citing papers in PubMed
1.1field-weighted citation impact, top 20% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

7 citing papers in PubMed, 9 citations in OpenAlex.

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  7. Proceedings of the 4BMC proceedings · 2020
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

18 authors at 15 institutions in 8 countries.

Hannah Farley1MRC Harwell Institute, Harwell Campus, Oxfordshire, UK.
Bruna Rubbo3Primary Ciliary Dyskinesia Centre, NIHR Southampton Biomedical Research Centre, University of Southampton and University Hospital Southampton NHS Foundation Trust, Southampton, UK.
Zuzanna Bukowy-Bieryllo4Institute of Human Genetics, Polish Academy of Sciences, Poznan, Poland.
Mahmoud Fassad5Genetics and Genomic Medicine Programme, University College London, UCL Great Ormond Street Institute of Child Health, London, UK.
Myrofora Goutaki7Institute of Social and Preventive Medicine, University of Bern, Bern, Switzerland.
Katharine Harman9Royal Brompton Hospital, Sydney Street, London, UK.
Claire Hogg10Paediatric Respiratory Medicine, Imperial College, London, UK.
Claudia E Kuehni7Institute of Social and Preventive Medicine, University of Bern, Bern, Switzerland.
Susana Lopes12CEDOC, Chronic Diseases Research Centre, NOVA Medical School, Faculdade de Ciências Médicas, Universidade Nova de Lisboa, 1169-056 Lisboa, Portugal.
Kim G NielsenDanish PCD & Child Centre, CF Centre Copenhagen, Paediatric Pulmonary Service, ERN Accredited, Department of Paediatrics and Adolescent Medicine, Copenhagen University Hospital, Rigshospitalet, Denmark.
Dominic P Norris1MRC Harwell Institute, Harwell Campus, Oxfordshire, UK.
Ana Reula14Department of Physiology, University of Valencia, Valencia, Spain.
Nisreen RummanDepartment of Pediatrics, Makassed Hospital, East Jerusalem, Palestine.
Amelia Shoemark9Royal Brompton Hospital, Sydney Street, London, UK.
Hannah Wilkins18University Hospital Southampton NHS Foundation Trust, Southampton, UK.
Agatha Wisse7Institute of Social and Preventive Medicine, University of Bern, Bern, Switzerland.
Jane S Lucas3Primary Ciliary Dyskinesia Centre, NIHR Southampton Biomedical Research Centre, University of Southampton and University Hospital Southampton NHS Foundation Trust, Southampton, UK.
June K MarthinDanish PCD & Child Centre, CF Centre Copenhagen, Paediatric Pulmonary Service, ERN Accredited, Department of Paediatrics and Adolescent Medicine, Copenhagen University Hospital, Rigshospitalet, Denmark.
University of Bern · CHCopenhagen University Hospital · DKAlexandria University · EGImperial College London · GBINCLIVA Health Research Institute · ESMakassed General Hospital · LBMary Lyon Centre at MRC Harwell · GBNIHR Southampton Biomedical Research Centre · GBPolish Academy of Sciences · PLRoyal Brompton Hospital · GBScience Oxford · GBUniversidade Nova de Lisboa · PTUniversity Hospital Southampton NHS Foundation Trust · GBUniversity of Dundee · GBUniversity of Southampton · GB

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Primary ciliary dyskinesia (PCD) is a chronic suppurative airways disease that is usually recessively inherited and has marked clinical phenotypic heterogeneity. Classic symptoms include neonatal respiratory distress, chronic rhinitis since early childhood, chronic otitis media, recurrent airway infections leading to bronchiectasis, chronic sinusitis, laterality defects with and without congenital heart disease including abnormal situs in approximately 50% of the cases, and male infertility. Lung function deteriorates progressively from childhood throughout life. 'Better Experimental Approaches to Treat Primary Ciliary Dyskinesia' (BEAT-PCD) is a network of scientists and clinicians coordinating research from basic science through to clinical care with the intention of developing treatments and diagnostics that lead to improved long-term outcomes for patients. BEAT-PCD activities are supported by EU funded COST Action (BM1407). The third BEAT-PCD conference and fourth PCD training school were held jointly in February 2018 in Lisbon, Portugal. Presentations and workshops focussed on advancing the knowledge and skills relating to PCD in: basic science, epidemiology, diagnostic testing, clinical management and clinical trials. The multidisciplinary conference provided an interactive platform for exchanging ideas through a program of lectures, poster presentations, breakout sessions and workshops. Three working groups met to plan consensus statements. Progress with BEAT-PCD projects was shared and new collaborations were fostered. In this report, we summarize the meeting, highlighting developments made during the meeting.

Indexed as

Chronic respiratory diseaseMultidisciplinaryPrimary ciliary dyskinesia

Identifiers

PMID30807620
PMCPMC6297936
OpenAlexW2904712252

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.