ArticleJournal of autism and developmental disorders2020
Brief Report: Participation of Black and African-American Families in Autism Research.
Article in Journal of autism and developmental disorders, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT04313283 (Addressing Racial Disparities in Autism Diagnosis and Treatment), which is not on this map. Cited by 29 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Addressing Racial Disparities in Autism Diagnosis and Treatment: Translating Peer-to-Peer Support Into a Clinical Setting
Who cites it
29 citing papers in PubMed, 1 synthesis or guideline pooled it, 58 citations in OpenAlex.
- A systematic review and meta synthesis of barriers and facilitators to Black women's participation in healthcare research.BMC medical research methodology · 2026Pooled it
- Virtual Interview Training Among BIPOC Autistic Transition-Age Youth: A Secondary Analysis of an Initial Effectiveness RCT.Journal of autism and developmental disorders · 2024Trial
- A Longitudinal RCT of P-ESDM With and Without Parental Mindfulness Based Stress Reduction: Impact on Child Outcomes.Journal of autism and developmental disorders · 2022Trial
- Black Caregiver Perspectives During a Developmental Diagnostic Interview.Journal of autism and developmental disorders · 2026Article
- Understanding disparities in autism diagnosis and care: A socioecological perspective.PLOS mental health · 2026Article
- Culturally sensitive mental health research: a scoping review.BMC psychiatry · 2025Article
- Lessons learned from a statewide needs assessment of Asian American families of children with developmental disabilities.International journal of developmental disabilities · 2025Article
- Resilience and strengths in the Black autism community in the United States: A scoping review.Autism research : official journal of the International Society for Autism Research · 2024Article
- Unpacking the prevalence: A warning against overstating the recently narrowed gap for Black autistic youth.Autism research : official journal of the International Society for Autism Research · 2024Article
- More Than Just a Variable: The Need to Explicitly Focus on Black Youth Within Autism Transitions Research.Autism in adulthood · 2024Article
- Screening, Diagnosis, and Intervention for Autism: Experiences of Black and Multiracial Families Seeking Care.Journal of autism and developmental disorders · 2024Article
- Short report: Recommendations for education, clinical practice, research, and policy on promoting well-being in autistic youth and adults through a positive focus on sexuality and gender diversity.Autism : the international journal of research and practice · 2024Article
- Social Validity of Pivotal Response Treatment for Young Autistic Children: Perspectives of Autistic Adults.Journal of autism and developmental disorders · 2024Article
- Collaborative Program to Support Parents of Black Children Awaiting a Developmental Evaluation.Pediatrics · 2024Article
- De-implementation of Low-Value Practices for Autism Spectrum Disorder.Clinical child and family psychology review · 2023Review
- "Simultaneously Vague and Oddly Specific": Understanding Autistic People's Experiences of Decision Making and Research Questionnaires.Autism in adulthood · 2023Article
- Seeking contexts that promote neurodiverse social success: Patterns of behavior during minimally-structured interaction settings in autistic and non-autistic youth.Development and psychopathology · 2023Article
- Implementation of Open Science Practices in Communication Sciences and Disorders Research With Black, Indigenous, and People of Color.Journal of speech, language, and hearing research : JSLHR · 2023Article
- A Community-Based Approach to Longitudinal Language Research With Racially and Ethnically Minoritized Autistic Young Adults: Lessons Learned and New Directions.American journal of speech-language pathology · 2023Article
- Perspective: The role of diversity advisory boards in autism research.Autism : the international journal of research and practice · 2023Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
5 authors at 1 institution in 1 country.
Funding
Abstract
Black and African-American families are underrepresented in research on autism spectrum disorder (ASD) and few studies have explored how to increase their involvement. To address this gap in the literature, this study explored the perspectives of 22 Black families raising children with ASD in order to identify facilitators and barriers to research participation; as well as suggestions to increase their involvement in ASD studies. Facilitators to research involvement included a desire to contribute to ASD research inclusive of Black families; to seek information and support for child and/or caregiver; and, to engage with culturally responsive research team members. Barriers to research involvement included stigma; denial, shame, and/or embarrassment; distrust of the research process; lack of time/interest; and research material inaccessibility or literacy issues.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.