ArticleThe American journal of hospice & palliative care2019
Patient Perspectives on Advance Care Planning via a Patient Portal.
Article in The American journal of hospice & palliative care, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 15 papers.
What it found
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Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
15 citing papers in PubMed.
- Article
- Design and evaluation patient portal for patients with HTLV-1.BMC medical informatics and decision making · 2025Article
- Systems for electronic documentation and sharing of advance care planning preferences: a scoping review.Progress in palliative care · 2024Article
- Development of an Advance Care Planning Portal-Based Tool for Community-Dwelling Persons Living With Cognitive Impairment: The ACPVoice Tool.The American journal of hospice & palliative care · 2023Article
- A systematic review of the effectiveness of patient education through patient portals.JAMIA open · 2023Review
- Patient Portals to Support Care Partner Engagement in Adolescent and Adult Populations: A Scoping Review.JAMA network open · 2022Article
- Characteristics of Patients and Proxy Caregivers Using Patient Portals in the Setting of Serious Illness and End of Life.Journal of palliative medicine · 2021Article
- Patient Portals to Support Palliative and End-of-Life Care: Scoping Review.Journal of medical Internet research · 2021Article
- Views of advanced cancer patients, families, and oncologists on initiating and engaging in advance care planning: a qualitative study.BMC palliative care · 2020Article
- Advance Care Planning Among Users of a Patient Portal During the COVID-19 Pandemic: Retrospective Observational Study.Journal of medical Internet research · 2020Observational
- Patient Portal Functionalities and Uptake: Systematic Review Protocol.JMIR research protocols · 2020Article
- "We're Taking Something So Human and Trying to Digitize": Provider Recommendations for mHealth in Palliative Care.Journal of palliative medicine · 2020Article
- Perceived Barriers and Facilitators of Implementing a Multicomponent Intervention to Improve Communication With Older Adults With and Without Dementia (SHARING Choices) in Primary Care: A Qualitative Study.Journal of primary care & community healthArticle
- Perceptions of Patient Portal Use for Advance Directive Documentation among Older Adults with Multiple Chronic Conditions.Journal of social work in end-of-life & palliative careArticle
- Use of an Ambulatory Patient Portal for Advance Care Planning Engagement.Journal of the American Board of Family Medicine : JABFMArticle
Corrections and comments
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Authors and funding
4 authors.
Funding
Abstract
backgroundPatient portals can offer patients an opportunity to engage in the advance care planning (ACP) process outside of clinical visits.
objectiveTo describe patient perspectives on use of patient portal-based ACP tools.
designInterviews with patients who used portal-based ACP tools. The tools included an electronic Medical Durable Power of Attorney (MDPOA) form to designate a medical decision maker, a patient-centered educational web page, online messaging, and patient access to completed advance directives stored in the electronic health record (EHR).
settingRegional health-care system with a common EHR. MEASUREMENTS: Semistructured interviews with purposefully sampled patients who used the ACP tools. Questions explored motivations for using the tools and perceptions about how the tools fit into ACP. Analysis followed a grounded hermeneutic editing approach.
resultsFrom 46 patients (mean age: 49, 63% female), 4 key themes emerged: (1) individualized explorations of the ACP tools, (2) personal initiation and engagement with ACP tools through the portal, (3) value of connecting ACP portal tools to clinical care, and (4) practicality of the ACP tools. Patients described benefits of communicating with health-care team members who referred them to online ACP tools, as well as having the electronic MDPOA form connected to clinical care.
conclusionsPatients considered the portal-based ACP tools to be practical and feasible to use within the scope of their own ACP experiences. Further study is needed to understand whether portal-based ACP tools increase the quality and quantity of ACP conversations and documentation that is available to inform medical decision-making.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.