ArticleAlzheimer disease and associated disorders
A Comprehensive Model of Factors Associated With Capability to "Live Well" for Family Caregivers of People Living With Mild-to-Moderate Dementia: Findings From the IDEAL Study.
Article in Alzheimer disease and associated disorders. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 19 papers.
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Who cites it
19 citing papers in PubMed.
- The Importance of a Relationship-Centred Approach to Deprescribing for People with Dementia or Mild Cognitive Impairment in Primary Care: A Qualitative Study.Dementia (London, England) · 2026Article
- Sources of inequality in "living well" with dementia: an intersectional analysis using a British cohort study.Innovation in aging · 2026Article
- Loneliness among dementia caregivers: evaluation of the psychometric properties and cutoff score of the Three-item UCLA Loneliness Scale.Frontiers in psychiatry · 2025Article
- Article
- Navigating the coronavirus pandemic two years on: Experiences of carers of people with dementia from the British IDEAL cohort.International journal of care and caring · 2024Article
- 'Caring beyond capacity' during the coronavirus pandemic: resilience and family carers of people with dementia from the IDEAL cohort.International journal of care and caring · 2024Article
- In constant search of the good: a qualitative study into insiders' perspectives on living well with dementia.Frontiers in psychiatry · 2024Article
- Resilience in caregivers of people with mild-to-moderate dementia: findings from the IDEAL cohort.BMC geriatrics · 2023Article
- Article
- Editorial: Innovations in dementia and ageing care.Frontiers in rehabilitation sciences · 2023Article
- Protocol of a feasibility randomised controlled trial of Empowered Conversations: training family carers to enhance their relationships and communication with people living with dementia.NIHR open research · 2023Article
- Comprehensive Understanding of Hispanic Caregivers: Focus on Innovative Methods and Validations.Journal of Alzheimer's disease reports · 2023Review
- "Living Well" Trajectories Among Family Caregivers of People With Mild-to-Moderate Dementia in the IDEAL Cohort.The journals of gerontology. Series B, Psychological sciences and social sciences · 2022Article
- Impact of COVID-19 on carers of people with dementia in the community: Findings from the British IDEAL cohort.International journal of geriatric psychiatry · 2022Article
- Living well with dementia: What is possible and how to promote it.International journal of geriatric psychiatry · 2022Article
- Quality of Life and Child's Autism-Specific Difficulties among Malaysian Main Caregivers: A Cross-Sectional Study.International journal of environmental research and public health · 2021Article
- Discontinuity in the Subjective Experience of Self Among People with Mild-To-Moderate Dementia Is Associated with Poorer Psychological Health: Findings from the IDEAL Cohort.Journal of Alzheimer's disease : JAD · 2020Article
- Use and costs of services and unpaid care for people with mild-to-moderate dementia: Baseline results from the IDEAL cohort study.Alzheimer's & dementia (New York, N. Y.) · 2019Article
- Quality of Life and Relationships in Caregivers of People With Dementia. A Gender Perspective.American journal of Alzheimer's disease and other dementiasArticle
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Authors and funding
22 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
introductionUnderstanding key influences on outcomes for caregivers of people with dementia is hampered by inconsistent conceptualization and measurement of outcomes and limited evidence about the relative impact of different variables. We aimed to address these issues.
methodsWe analyzed data from 1283 caregivers of community-dwelling individuals with mild-to-moderate dementia in the Improving the experience of Dementia and Enhancing Active Life cohort study. We generated a "living well" latent factor from measures of quality of life, satisfaction with life, and well-being. We used structural equation modelling to derive latent variables for 7 domains reflecting caregivers' perceptions of their personal resources and experiences, and to examine the associations with caregivers' perceptions of their capability to "live well."
resultsThe domain of psychological characteristics and psychological health was most strongly related to living well [2.53; 95% confidence interval (CI), 2.08-2.97], followed by physical fitness and physical health (1.48; 95% CI, 1.04-1.91) and experiencing caregiving (1.34; 95% CI, 0.99-1.70). Social capitals, assets and resources (0.68; 95% CI, 0.35-1.00) and relationship with the person with dementia (-0.22; 95% CI, -0.41 to -0.03) had smaller, significant associations. Social location (0.28; 95% CI, -0.33 to 0.89) and managing everyday life with dementia (0.06; 95% CI, -0.15 to 0.28) were not significantly associated with living well. DISCUSSION: These findings demonstrate the importance of supporting caregivers' psychological and physical health and their ability to develop and maintain positive coping strategies, as well as enabling them to maintain vital social capitals, assets and resources.
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