ArticleBMJ open2019
PARENTS 2 Study: a qualitative study of the views of healthcare professionals and stakeholders on parental engagement in the perinatal mortality review-from 'bottom of the pile' to joint learning.
Article in BMJ open, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 16 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
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Who cites it
16 citing papers in PubMed, 25 citations in OpenAlex.
- Listening to Unheard Voices: Addressing Systemic Racism to Improve Maternity Care for Black Women After Perinatal Loss.International journal of environmental research and public health · 2026Article
- Identifying Key Areas to Improve Care for Families Around the Time of Stillbirth or Neonatal Death: A Survey of Maternity Services in Australia.The Australian & New Zealand journal of obstetrics & gynaecology · 2026Article
- Giving credit where credit's due - recognition of patient partners in health research.Research involvement and engagement · 2026Article
- Exploring the Intensive Care Nurses' Experience after Neonatal Deaths: A Hermeneutic Phenomenological Study.Journal of caring sciences · 2025Article
- Closing investigations: The role of national policy in shaping structural, organisational and relational constraints on learning from patient safety incidents.Safety science · 2025Article
- Community engagement in maternal and perinatal death surveillance and response: a realist review.BMC pregnancy and childbirth · 2025Review
- Verbal Information From Parents About Stillbirth: The VIPS Study (Phase One).The Australian & New Zealand journal of obstetrics & gynaecology · 2025Article
- Family Interviews Improve Health Service Recommendations in Mortality Review Process: A Mixed-Methods Assessment.Health expectations : an international journal of public participation in health care and health policy · 2025Article
- Strengthening open disclosure after incidents in maternity care: a realist synthesis of international research evidence.BMC health services research · 2023Article
- Bereaved parents involvement in maternity hospital perinatal death review processes: 'Nobody even thought to ask us anything'.Health expectations : an international journal of public participation in health care and health policy · 2023Review
- Stillbirth: prevention and supportive bereavement care.BMJ medicine · 2023Review
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- Protocol for the development of a core outcome set for stillbirth care research (iCHOOSE Study).BMJ open · 2022Article
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- PARENTS 2 study: consensus report for parental engagement in the perinatal mortality review process.Ultrasound in obstetrics & gynecology : the official journal of the International Society of Ultrasound in Obstetrics and Gynecology · 2019Article
Corrections and comments
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Authors and funding
8 authors at 4 institutions in 4 countries.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectiveEngaging bereaved parents in the review process that examines their care before and after a perinatal death might help parents deal with their grief more effectively and drive improvements in patient safety. The objective of this study is to explore whether healthcare professionals would accept or support parent engagement in the perinatal mortality review process.
designQualitative focus group interviews. Transcripts were analysed with an inductive thematic approach.
settingTwo geographically distinct tertiary maternity hospitals in the UK.
participantsFive focus groups were conducted with clinical staff including midwives, obstetricians, neonatologists, nursing staff and chaplaincy services.
resultsTwenty-seven healthcare professionals unanimously agreed that parents' involvement in the perinatal mortality review process is useful and necessary. Six key themes emerged including: parental engagement; need for formal follow-up; critical structure of perinatal mortality review meeting; coordination and streamlining of care; advocacy for parents including role of the bereavement care lead; and requirement for training and support for staff to enable parental engagement.
conclusionsHealthcare professionals strongly advocated engaging bereaved parents in the perinatal mortality review: empowering parents to ask questions, providing feedback on care, helping generate lessons and providing them with the opportunity to discuss a summary of the review conclusions with their primary healthcare professional contact. The participants agreed it is time to move on from 'a group of doctors reviewing notes' to active learning and improvement together with parents, to enable better care and prevention of perinatal death.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.