ArticleResearch involvement and engagement2019
Involving service users in the qualitative analysis of patient narratives to support healthcare quality improvement.
Article in Research involvement and engagement, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 30 papers, 3 of them syntheses that pooled it.
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
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Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
30 citing papers in PubMed, 3 syntheses or guidelines pooled it.
- Meaningful patient and public involvement in digital health innovation, implementation and evaluation: A systematic review.Health expectations : an international journal of public participation in health care and health policy · 2022Pooled it
- Adapting a codesign process with young people to prioritize outcomes for a systematic review of interventions to prevent self-harm and suicide.Health expectations : an international journal of public participation in health care and health policy · 2022Pooled it
- The use of co-production, co-design and co-creation to mobilise knowledge in the management of health conditions: a systematic review.BMC health services research · 2022Pooled it
- Development and Validation of the 'Working With Chronic Pain: Assessment of Impacts' (WORC-PAIN) Questionnaire for People in Paid Work With Chronic Pain.European journal of pain (London, England) · 2026Article
- Article
- An Evaluation Protocol for A Stabilisation and Referral Area (SARA): A Novel Short Stay Psychiatry Unit Serving A Remote Region of Australia.Alpha psychiatry · 2025Article
- The Importance of Lived Experience: A Scoping Review on the Value of Patient and Public Involvement in Health Research.Health expectations : an international journal of public participation in health care and health policy · 2025Article
- "All sorts of colours of emotions": Ambulance call-handlers' perceptions of the barriers to CPR in out-of-hospital cardiac arrest.Resuscitation plus · 2025Article
- Exploring the role of Patient and Public Involvement in Implementation Research using the Study of Implementation of Midwifery Continuity of Carer (SIMCA).NIHR open research · 2025Article
- Supporting continuing bonds for parents with infants with uncertain futures on neonatal units in the United Kingdom: co-designing a culturally sensitive music therapy intervention.Frontiers in psychiatry · 2025Article
- 'Including us, talking to us and creating a safe environment'-Youth patient and public involvement and the Walking In ScHools (WISH) Study: Lessons learned.Health expectations : an international journal of public participation in health care and health policy · 2024Article
- Roles, outcomes, and enablers within research partnerships: A rapid review of the literature on patient and public involvement and engagement in health research.Research involvement and engagement · 2023Review
- Values and value in patient and public involvement: moving beyond methods.Future healthcare journal · 2022Article
- How persons with systemic mastocytosis describe the time between symptom onset and receiving diagnosis.Primary health care research & development · 2022Article
- Participatory codesign of patient involvement in a Learning Health System: How can data-driven care be patient-driven care?Health expectations : an international journal of public participation in health care and health policy · 2022Article
- Methods to Generate Innovative Research Ideas and Improve Patient and Public Involvement in Modern Epidemiological Research: Review, Patient Viewpoint, and Guidelines for Implementation of a Digital Cohort Study.Journal of medical Internet research · 2021Review
- Improving the depth of data quality or increasing confusion? Reflections on a data analysis involving members of a self-help group for relatives of people living with dementia.Health expectations : an international journal of public participation in health care and health policy · 2021Article
- Patient and public involvement in care home research: Reflections on the how and why of involving patient and public involvement partners in qualitative data analysis and interpretation.Health expectations : an international journal of public participation in health care and health policy · 2021Article
- Twitter Users' Views on Mental Health Crisis Resolution Team Care Compared With Stakeholder Interviews and Focus Groups: Qualitative Analysis.JMIR mental health · 2021Article
- Patient and public involvement in palliative care research: What works, and why? A qualitative evaluation.Palliative medicine · 2021Article
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7 authors.
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Abstract
plain english summaryPatient or user involvement in health research is well-established but is often limited to advising on research questions and design, leaving researchers to collect and analyse 'data' (which in this paper means written copies of interviews with patients about their experiences). We were working with sets of interviews with 1) young people with depression and 2) people with experiences of stroke. We were looking for key themes that it would be useful for the NHS to know about, and we developed short films which healthcare staff can use to think about how to make care more patient-centred. We wanted to see what user involvement in this analysis would bring, and how best to achieve it practically.After the researcher team had analysed the interviews, we ran two one-day workshops with people with relevant experience as a patient/service user or carer. We gave them some brief training in how to analyse interviews and how they might be used for improving the quality of care. Then we looked at extracts from the interviews, and discussed whether people could see the same themes as the researcher.People identified similar themes to the researcher, but also identified new details the researcher had missed. However, they felt reading large amounts of text was not the best way to use their time and experience. Instead they recommended that a better approach would be for a researcher to meet with a group of users at the start of analysis, to discuss what to look out for. ABSTRACT:
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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.