ArticleBMC psychiatry2019
The burden, support and needs of primary family caregivers of people experiencing schizophrenia in Beijing communities: a qualitative study.
Article in BMC psychiatry, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 60 papers, 1 of them a synthesis that pooled it.
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Who cites it
60 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Pooled it
- The Effect of Emotion Regulation Training on Stress, Anxiety, and Depression in Family Caregivers of Patients with Schizophrenia: A Randomized Controlled Trial.Community mental health journal · 2020Trial
- A cross-cultural study of the experience of family members caring for persons with schizophrenia in Australia and India.Social psychiatry and psychiatric epidemiology · 2026Article
- Aging while caregiving: a life course qualitative study of left-behind older parents caring for adult children with schizophrenia in rural China.International journal for equity in health · 2026Article
- Perceptions of Psychiatric Mental Health Nurses Regarding the Needs of Family Members Caring for People Living With Mental Illness: A Qualitative Study in Lobatse, Botswana.Journal of psychiatric and mental health nursing · 2026Article
- Developing a core competency framework for community-based psychiatric rehabilitation practitioners in China: a modified Delphi study.BMC psychiatry · 2026Article
- Perceived reasons for violence toward family caregivers by relatives with schizophrenia in Eastern Turkey: a qualitative study.BMC psychology · 2026Article
- Hope in mental health and psychiatric nursing: a scoping review.BMC psychiatry · 2026Article
- Psychometric evaluation of a multidimensional family resource assessment tool for schizophrenia (M-FRAT) from caregivers' perspectives in communities of Beijing, China.Frontiers in psychiatry · 2026Article
- Associations between multidimensional social support and satisfaction with community mental health services: evidence from China with heterogeneity analysis.Frontiers in public health · 2026Article
- Experiences, needs and priorities of family caregivers of people with severe mental health conditions in low- and middle-income countries: A systematic review of qualitative studies.Global mental health (Cambridge, England) · 2026Review
- Chronic pain and its correlation with quality of life in hospitalized stable patients with schizophrenia: a cross-sectional survey in Southern Sichuan, China.Frontiers in psychiatry · 2026Article
- Identifying Priorities for Enhancing Village Health Volunteer's Mental Health Recovery Practices in Thai Rural Communities: A Nominal Group Technique Study.Health expectations : an international journal of public participation in health care and health policy · 2025Article
- Psychosocial Interventions for Families Caring for Mental Health Care Users: A Nominal Group Technique.Journal of psychiatric and mental health nursing · 2025Article
- Investigating the relationship between mental health literacy, care burden and emotional styles in family caregivers of people with mental disorders.BMC psychology · 2025Article
- The relationship between psychological resilience and caregiver burden among caregivers of patients with bipolar disorder: the mediating role of coping styles.BMC nursing · 2025Article
- Affiliate stigma among primary caregivers of adult patients with severe mental illness: a facility-based cross-sectional study in Addis Ababa, Ethiopia.BMC psychiatry · 2025Article
- Social support interventions for caregivers of older adults with dementia: a scoping review.BMJ open · 2025Article
- Sequential mediation model of social support, care burden, and internalized stigma among family function and depression in caregivers of patients with schizophrenia: evidence from a cross-sectional study in southwest China.Social psychiatry and psychiatric epidemiology · 2025Article
- Experiences in Accessing Treatment Among Females with Schizophrenia: A Qualitative Study from Turkey.Healthcare (Basel, Switzerland) · 2025Article
Corrections and comments
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Authors and funding
8 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundFamily caregivers play crucial roles in taking care of people experiencing schizophrenia in the community. The burdens on and needs of caregivers of these patients should be emphasized. This study aimed to explore the perspective of family caregivers of people experiencing schizophrenia in the communities of Beijing in terms of the burdens of care and the acquisition and further need for support in order to provide guidance to health care providers regarding how to target therapeutic interventions for families of individuals experiencing schizophrenia and to provide recommendations for policy makers to tailor countermeasures and services.
methodsA total of 20 family caregivers of schizophrenia patients were enrolled in our study. A face-to-face and semi-structured in-depth qualitative interview study was conducted to explore the caregivers' perspective on the burden on caregivers, support and further needs. This study was conducted in the community health service centres where the family caregivers regularly visit. The study was carried out according to good ethical practices, data analysis and reporting guidelines.
resultsMost participants reported that they were suffering from heavy life burdens and had negative experiences with respect to obtaining social support, and they emphasized that they would require more support. Economic and daily housework burdens, limited social communication, and psychological stresses were the principal burdens. Support including financial, medical and information and educational support did not satisfy the needs of the caregivers and their patients. More financial support, respect, and rehabilitation institutions were reported to be needs of the caregivers.
conclusionsFamily caregivers of people experiencing schizophrenia suffer from heavy physical and psychological burdens; however, the current support provided is insufficient. More services and better public attitudes should be considered for people experiencing schizophrenia and their caregivers.
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