Evidence map›Paper›PMID 30783028›Full record

ArticleHormone research in paediatrics2018

Psychosocial Screening in Disorders/Differences of Sex Development: Psychometric Evaluation of the Psychosocial Assessment Tool.

Michelle M Ernst, Melissa Gardner, Constance A Mara, Emmanuèle C Délot, Patricia Y Fechner, Michelle Fox, Meilan M Rutter, Phyllis W Speiser, Eric Vilain, Erica M Weidler and 2 more

Abstract read
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In one paragraph

Article in Hormone research in paediatrics, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 16 papers.

0numbers the graph read from it
0cells of the map it votes in
16citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

16 citing papers in PubMed.

  1. Article
  2. Article
  3. Differences of sex development.Nature reviews. Disease primers · 2025
    Review
  4. Article
  5. Article
  6. Review
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

12 authors.

Michelle M ErnstDepartment of Pediatrics, University of Cincinnati College of Medicine, and Disorders of Sex Development Center, Cincinnati Children's Hospital Medical Center, Cincinnati, Ohio, USA, michelle.ernst@cchmc.org.
Melissa GardnerDepartment of Pediatrics and Communicable Diseases and the Child Health Evaluation and Research Center, University of Michigan Medical School, Ann Arbor, Michigan, USA.
Constance A MaraDepartment of Pediatrics, University of Cincinnati College of Medicine, and Division of Behavioral Medicine and Clinical Psychology, Cincinnati Children's Hospital Medical Center, Cincinnati, Ohio, USA.
Emmanuèle C DélotCenter for Genetic Medicine Research, Children's National Medical Center, Washington, District of Columbia, USA.
Patricia Y FechnerDepartment of Pediatrics, University of Washington, Seattle Children's DSD Program, Seattle, Washington, USA.
Michelle FoxDepartment of Pediatrics, UCLA School of Medicine, Los Angeles, California, USA.
Meilan M RutterDepartment of Pediatrics, University of Cincinnati College of Medicine, and Disorders of Sex Development Center, Cincinnati Children's Hospital Medical Center, Cincinnati, Ohio, USA.
Phyllis W SpeiserDepartment of Pediatrics, Cohen Children's Medical Center of New York and Zucker School of Medicine at Hofstra University, New Hyde Park, New York, USA.
Eric VilainCenter for Genetic Medicine Research, Children's National Medical Center, Washington, District of Columbia, USA.
Erica M WeidlerDepartment of Pediatric Surgery, Phoenix Children's Hospital, Phoenix, Arizona, USA.
David E SandbergDepartment of Pediatrics and Communicable Diseases and the Child Health Evaluation and Research Center, University of Michigan Medical School, Ann Arbor, Michigan, USA.
The DSD-Translational Research Network Leadership Group and Psychosocial Workgroup

Funding

Disorders of Sex Development: Platform for Basic and Translational ResearchR01HD068138 · NICHD · UNIVERSITY OF CALIFORNIA LOS ANGELES · PI SANDBERG, DAVID ERIC, VILAIN, ERIC J. · 2011 to 2015
$4.0M
NICHD NIH HHS R01 HD068138
6 · The paper itself

Abstract

BACKGROUND/

aimsUtilization of a psychosocial screener to identify families affected by a disorder/difference of sex development (DSD) and at risk for adjustment challenges may facilitate efficient use of team resources to optimize care. The Psychosocial Assessment Tool (PAT) has been used in other pediatric conditions. The current study explored the reliability and validity of the PAT (modified for use within the DSD population; PAT-DSD).

methodsParticipants were 197 families enrolled in the DSD-Translational Research Network (DSD-TRN) who completed a PAT-DSD during a DSD clinic visit. Psychosocial data were extracted from the DSD-TRN clinical registry. Internal reliability of the PAT-DSD was tested using the Kuder-Richardson-20 coefficient. Validity was examined by exploring the correlation of the PAT-DSD with other measures of caregiver distress and child emotional-behavioral functioning.

resultsOne-third of families demonstrated psychosocial risk (27.9% "Targeted" and 6.1% "Clinical" level of risk). Internal reliability of the PAT-DSD Total score was high (α = 0.86); 4 of 8 subscales met acceptable internal reliability. A priori predicted relationships between the PAT-DSD and other psychosocial measures were supported. The PAT-DSD Total score related to measures of caregiver distress (r = 0.40, p < 0.001) and to both caregiver-reported and patient self-reported behavioral problems (r = 0.61, p < 0.00; r = 0.37, p < 0.05).

conclusionsThis study provides evidence for the reliability and validity of the PAT-DSD. Given variability in the internal reliability across subscales, this measure is best used to screen for overall family risk, rather than to assess specific psychosocial concerns.

Indexed as

RegistriesSexual DevelopmentChildDisorders of Sex DevelopmentFemaleHumansMalePsychometricsReproducibility of ResultsRisk AssessmentDisorders of sex developmentInterdisciplinary careIntersexPsychometric evaluationScreening

Identifiers

PMID30783028
PMCPMC6512800

What OpenQuestion holds

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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.