ArticleJournal of family nursing2019
Accounts of Family Conflict in Home Hospice Care: The Central Role of Autonomy for Informal Caregiver Resilience.
Article in Journal of family nursing, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 13 papers, 1 of them a synthesis that pooled it.
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The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
13 citing papers in PubMed, 1 synthesis or guideline pooled it, 31 citations in OpenAlex.
- Social relationship challenges perceived by cancer patients and survivors: a qualitative meta-synthesis.BMC psychology · 2025Pooled it
- When Family Life Contributes to Cancer Caregiver Burden in Palliative Care.Journal of family nursing · 2023Trial
- Family Relationships as Modifiable Targets for Caregiver Quality of Life in Hospice Care: A Multicenter Study.Current oncology (Toronto, Ont.) · 2026Observational
- Exploring associations between area deprivation index, income, and loneliness among cancer caregivers.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2026Article
- Associations between area deprivation and mental health by household income among cancer caregivers.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2025Article
- "Dignity as a Small Candle Flame That Doesn't Go Out!": An Interpretative Phenomenological Study with Patients Living with Advanced Chronic Obstructive Pulmonary Disease.International journal of environmental research and public health · 2022Article
- Balancing Work and Hospice Caregiving-A Closer Look at Burden, Preparedness, and Mental Health.Journal of pain and symptom management · 2022Article
- The role of caregivers in the clinical pathway of patients newly diagnosed with breast and prostate cancer: A study protocol.Frontiers in psychology · 2022Article
- Investigating the relationship between quality of life and hope in family caregivers of hemodialysis patients and related factors.BMC nephrology · 2021Article
- Patterns of stress and support in social support networks of in-home hospice cancer family caregivers.Journal of social and personal relationships · 2021Article
- Balancing care demands and personal needs: A typology on the reconciliation of informal dementia care with personal life based on narrative interviews.Dementia (London, England) · 2021Article
- The Relationship between Practitioners and Caregivers during a Treatment of Palliative Care: A Grounded Theory of a Challenging Collaborative Process.International journal of environmental research and public health · 2021Article
- Dignity of older home-dwelling women nearing end-of-life: Informal caregivers' perception.Nursing ethics · 2021Article
Corrections and comments
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Authors and funding
4 authors at 2 institutions in 1 country.
Funding
Abstract
End-of-life caregiving is a highly stressful experience often fraught with conflict and tension. However, little is known about the ways family conflict manifests for informal caregivers of home hospice patients (IHCs). Framed by relational dialectics theory, the purpose of this study was to provide nurses and other health care professionals with an empirical understanding of how IHCs experience family conflict and tensions associated with caregiving. A second aim was to determine what strategies IHCs use to manage these family conflicts. Data used in this qualitative secondary analysis were originally collected as part of a randomized clinical trial of an IHC support intervention. Based on thematic analysis of data from 25 IHCs who reported family conflict, a conceptual model of caregiver resilience was developed from the themes and categories that emerged during the coding stage. Autonomy was identified as a central tension. IHCs used several strategies to address family conflict including communication, formal support, and emotional self-care.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.