Evidence map›Paper›PMID 30767968›Full record

ArticleOncology nursing forum2019

Meaning Making and Religious Engagement Among Survivors of Childhood Brain Tumors and Their Caregivers.

Em Rabelais, Nora L Jones, Connie M Ulrich, Janet A Deatrick

Abstract read
In one paragraph

Article in Oncology nursing forum, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 6 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
6citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

6 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
  2. Article
  3. Article
  4. Article
  5. Article
  6. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors.

Em RabelaisUniversity of Illinois at Chicago.
Nora L JonesTemple University.
Connie M UlrichNew Courtland Center for Transitions and Health, University of Pennsylvania in Philadelphia.
Janet A DeatrickUniversity of Pennsylvania.

Funding

RESEARCH ON VULNERABLE WOMEN CHILDREN AND FAMILIEST32NR007100 · NINR · UNIVERSITY OF PENNSYLVANIA · PI MEDOFF-COOPER, BARBARA S · 1998 to 2018
$7.2M
Mothers as caregivers for survivors of brain tumorsR01NR009651 · NINR · UNIVERSITY OF PENNSYLVANIA · PI DEATRICK, JANET ALMA · 2007 to 2009
$1.1M
Caregiver functional expectations for survivors of childhood brain tumorsF31NR013091 · NINR · UNIVERSITY OF PENNSYLVANIA · PI RABELAIS, EMMELINE · 2011 to 2013
$119k
NIH HHS F31NR013091NIH HHS R01NR009651NIH HHS T32NR007100NINR NIH HHS F31 NR013091NINR NIH HHS R01 NR009651NINR NIH HHS T32 NR007100
6 · The paper itself

Abstract

purposeTo describe how adolescent and young adult survivors and their mother-caregivers ascribe meaning to their post-brain tumor survivorship experience, with a focus on sense making and benefit findings and intersections with religious engagement. PARTICIPANTS &

settingAdolescent and young adult survivors of childhood brain tumors and their families, living in their community settings. METHODOLOGIC APPROACH: Secondary analysis of simultaneous and separate individual, semistructured interviews of the 40 matched dyads (80 total interviews) occurred using conventional content analysis across and within dyads. Meaning is interpreted through narrative profiles of expectations for function and independence.

findingsParticipants made sense of the brain tumor diagnosis by finding benefits and nonbenefits unique to their experiences. Meaning was framed in either nonreligious or religious terms. IMPLICATIONS FOR NURSING: Acknowledging positive meaning alongside negative or neutral meaning could enhance interactions with survivors, caregivers, and their families. Exploring the meaning of their experiences may help them to reconstruct meaning and reframe post-tumor realities through being heard and validated.

Indexed as

SpiritualityAdaptation, PsychologicalAdolescentAdultBrain NeoplasmsCancer SurvivorsCaregiversChildChild, PreschoolFemaleHumansMaleMiddle AgedMothersQuality of LifeStress, Psychologicalchildhood brain tumormeaning makingreligious engagementsurvivorship

Identifiers

PMID30767968
PMCPMC6436383

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.