Evidence map›Paper›PMID 30767349›Full record

ArticleHealth expectations : an international journal of public participation in health care and health policy2019

Developing education materials for caregivers of culturally and linguistically diverse patients: Insights from a qualitative analysis of caregivers' needs, access and understanding of information.

Jamie L Schaffler, Sarah Tremblay, Andréa M Laizner, Sylvie Lambert

Abstract read
In one paragraph

Article in Health expectations : an international journal of public participation in health care and health policy, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 11 papers.

0numbers the graph read from it
0cells of the map it votes in
11citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

11 citing papers in PubMed.

  1. Article
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  9. Migrant Caregivers of Older People in Spain: Qualitative Insights into Relatives' Experiences.International journal of environmental research and public health · 2020
    Article
  10. Article
  11. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors.

Jamie L SchafflerIngram School of Nursing, McGill University, Montréal, Québec, Canada.
Sarah TremblayIngram School of Nursing, McGill University, Montréal, Québec, Canada.
Andréa M LaiznerIngram School of Nursing, McGill University, Montréal, Québec, Canada.ORCID 0000-0002-7482-4542
Sylvie LambertIngram School of Nursing, McGill University, Montréal, Québec, Canada.ORCID 0000-0002-9202-9251

Funding

Quebec Nursing Intervention Research Network (RISIIQ) 4703
6 · The paper itself

Abstract

objectivesTo explore the information needs of caregivers of culturally and linguistically diverse (CALD) patients, and how they access and understand health information related to the management of their care person's chronic illness(es).

backgroundCaregivers of CALD patients experience greater unmet needs compared to the general caregiver population. They experience many challenges in identifying resources and accessing formal supports to aid in self-management behaviours.

methodsEleven caregivers were recruited from outpatient clinics in Québec, Canada. Consenting caregivers participated in one face-to-face or phone interview. A qualitative descriptive design and inductive content analysis were used to identify themes.

resultsCaregivers described a "village" approach to caregiving in which more than one individual was involved in patient care. The specific roles ascribed to caregivers defined their information needs. Caregivers described two categories of information needs: perceived and unperceived. Perceived information needs were explicit, and centred on the medical management of illnesses. Unperceived needs were unrecognized knowledge gaps that emerged during interviews and focused on self-care.

conclusionAlthough caregivers' perceived needs are often met, their unperceived needs remain unmet. Health-care providers should perform need assessments to identify caregivers' unperceived needs, with the aims of providing culturally competent care and ongoing support.

Indexed as

RoleAdultAgedCaregiversCulturally Competent CareFemaleHealth LiteracyHumansLanguageMaleMiddle AgedNeeds AssessmentQualitative ResearchQuebecCALDcaregiverchronic illnessinformation needsperceived needsunmet needsunperceived needs

Identifiers

PMID30767349
PMCPMC6543161

What OpenQuestion holds

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LicenceCC BY
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.