ArticleHealth and quality of life outcomes2019
Development and evaluation of a quality of life measurement scale in English and Chinese for family caregivers of patients with advanced cancers.
Article in Health and quality of life outcomes, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT04014309 (Supportive and Survivorship Care Program for Cancer Patients), which is not on this map. Cited by 11 papers, 1 of them a synthesis that pooled it.
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Supportive and Survivorship Care Program for Cancer Patients: a Cluster Randomized Controlled Pilot Study Among Breast and Gynaecological Cancer Patients
Who cites it
11 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Pooled it
- Trial
- Article
- Article
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- ENABLE-SG (Educate, Nurture, Advise, Before Life Ends for Singapore) as a proactive palliative care model: protocol for a hybrid type 1 effectiveness-implementation randomized wait-list controlled trial.BMC palliative care · 2024Article
- Development of a short form of the Singapore Caregiver Quality of Life Scale - Dementia: SCQOLS-D-15.Journal of patient-reported outcomes · 2021Article
- Reference values for the short forms of the Singapore Caregiver Quality of Life Scale.Journal of patient-reported outcomes · 2021Article
- Development and evaluation of the Singapore Caregiver Quality of Life Scale - Dementia.Journal of patient-reported outcomes · 2020Article
- Reference values for and interpretation of the Singapore Caregiver Quality of Life Scale: a quantile regression approach.Journal of patient-reported outcomes · 2020Article
- Cancer Health Literacy and Its Correlated Factors in the United Arab Emirates-A Cross Sectional Study.Cancer control : journal of the Moffitt Cancer CenterArticle
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Authors and funding
12 authors.
Funding
Abstract
backgroundThe quality of life of family caregivers of patients with advanced cancers is an important concern in oncology care. Yet, there are few suitable measurement scales available for use in Asia. This study aims to develop and evaluate a locally derived measurement scale in English and Chinese to assess the quality of life of family caregivers of patients with advanced cancers in Singapore.
methodsScale contents were generated from qualitative research that solicited inputs from family caregivers. Six hundred and twelve family caregivers of patients with advanced cancers were recruited, of whom 304 and 308 chose to complete the English and Chinese versions of the quality of life scale, respectively. A follow-up survey was conducted for test-retest reliability assessment. Analyses began with pooling all observations, followed by analyses stratified by language samples and ethnic groups (among English-speaking participants).
resultsFactor analysis identified 5 domains of quality of life. The Root Mean Square Error of Approximation was 0.041 and Comparative Fit Index was 0.948. Convergent and divergent validity of the total and domain scores were demonstrated in terms of correlation with the Brief Assessment Scale for Caregiver and its sub-scales and a measure of financial concern; known-group validity was demonstrated in terms of differences between groups defined by patient's performance status. Internal consistency (Cronbach's alpha) of the total and domain scores ranged from 0.86 to 0.93. Test-retest reliability (intraclass correlation coefficient) ranged from 0.74 to 0.89. Separate analyses of the English- and Chinese-speaking samples and ethnic groups gave similar results.
conclusionA new, validated, multi-domain quality of life measurement scale for caregivers of patients with advanced cancers that is developed with inputs from family caregivers is now available in two languages. We call this the Singapore Caregiver Quality Of Life Scale (SCQOLS).
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