Evidence map›Paper›PMID 30760261›Full record

ArticleHarm reduction journal2019

"Maybe if I stop the drugs, then maybe they'd care?"-hospital care experiences of people who use drugs.

Soo Chan Carusone, Adrian Guta, Samantha Robinson, Darrell H Tan, Curtis Cooper, Bill O'Leary, Karen de Prinse, Grant Cobb, Ross Upshur, Carol Strike

Open access · goldAbstract read
In one paragraph

Article in Harm reduction journal, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 109 papers, 2 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
109citing papers in PubMed, 2 pooled it
10.9field-weighted citation impact, top 1% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

109 citing papers in PubMed, 2 syntheses or guidelines pooled it, 187 citations in OpenAlex.

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  10. Syringe Services Participants' Preferences for Wound Care, HIV/Hepatitis C Virus Screening, and Opioid Use Disorder Treatment: A Discrete Choice Experiment.Value in health : the journal of the International Society for Pharmacoeconomics and Outcomes Research · 2026
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49 more citing papers are in PubMed but not listed here.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

10 authors at 8 institutions in 1 country.

Soo Chan CarusoneCasey House, 119 Isabella St, Toronto, ON, M4Y 1P2, Canada.
Adrian GutaSchool of Social Work, University of Windsor, 167 Ferry Street, Windsor, ON, N9A 0C5, Canada.
Samantha RobinsonDalla Lana School of Public Health, University of Toronto, 155 College St, Toronto, ON, M5T 3M7, Canada.
Darrell H TanSt. Michael's Hospital, 30 Bond St, Toronto, ON, M5B 1W8, Canada.
Curtis CooperOttawa Hospital Research Institute, 501 Smyth Box 511, Ottawa, ON, K1H 8L6, Canada.
Bill O'LearyCasey House, 119 Isabella St, Toronto, ON, M4Y 1P2, Canada.
Karen de PrinseCasey House, 119 Isabella St, Toronto, ON, M4Y 1P2, Canada.
Grant CobbAIDS Committee of Ottawa, 19 Main St, Ottawa, ON, K1S 1A9, Canada.
Ross UpshurDalla Lana School of Public Health, University of Toronto, 155 College St, Toronto, ON, M5T 3M7, Canada.
Carol StrikeDalla Lana School of Public Health, University of Toronto, 155 College St, Toronto, ON, M5T 3M7, Canada. carol.strike@utoronto.ca.
Casey House · CAUniversity of Toronto · CAAIDS Committee of Toronto · CALunenfeld-Tanenbaum Research Institute · CAMcMaster University · CAOttawa Hospital · CASt. Michael's Hospital · CAUniversity of Windsor · CA

Funding

Ontario HIV Treatment Network (CA) CBR1035
6 · The paper itself

Abstract

backgroundDrug use is associated with increased morbidity and mortality but people who use drugs experience significant barriers to care. Data are needed about the care experiences of people who use drugs to inform interventions and quality improvement initiatives. The objective of this study is to describe and characterize the experience of acute care for people who use drugs.

methodsWe conducted a qualitative descriptive study. We recruited people with a history of active drug use at the time of an admission to an acute care hospital, who were living with HIV or hepatitis C, in Toronto and Ottawa, Canada. Data were collected in 2014 and 2015 through semi-structured interviews, audio-recorded and transcribed, and analyzed thematically.

resultsTwenty-four adults (18 men, 6 women) participated. Participants predominantly recounted experiences of stigma and challenges accessing care. We present the identified themes in two overarching domains of interest: perceived effect of drug use on hospital care and impact of care experiences on future healthcare interactions. Participants described significant barriers to pain management, often resulting in inconsistent and inadequate pain management. They described various strategies to navigate access and receipt of healthcare from being "an easy patient" to self-advocacy. Negative experiences influenced their willingness to seek care, often resulting in delayed care seeking and targeting of certain hospitals.

conclusionDrug use was experienced as a barrier at all stages of hospital care. Interventions to decrease stigma and improve our consistency and approach to pain management are necessary to improve the quality of care and care experiences of those who use drugs.

Indexed as

Social StigmaAdultDelivery of Health CareDrug UsersFemaleHepatitis CHIV InfectionsHospitalsHumansMaleMiddle AgedPain ManagementPatient Acceptance of Health CarePatient AdmissionPatient AdvocacyQuality of Health CareDrug useHospital carePatient experienceQualitative researchStigma

Identifiers

PMID30760261
PMCPMC6373073
OpenAlexW2922409609

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.