Evidence map›Paper›PMID 30755396›Full record

ArticleBMJ supportive & palliative care2019

Primary palliative care research: opportunities and challenges.

Stephen Barclay, Emily Moran, Sue Boase, Margaret Johnson, Roberta Lovick, Jonathan Graffy, Patrick L White, Brenda Deboys, Katy Harrison, Brooke Swash

Abstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in BMJ supportive & palliative care, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 9 papers.

0numbers the graph read from it
0cells of the map it votes in
9citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

9 citing papers in PubMed.

  1. Article
  2. Article
  3. Article
  4. Article
  5. Review
  6. Palliative Care: A Primary Care Pharmacist Perspective.Pharmacy (Basel, Switzerland) · 2022
    Article
  7. Article
  8. Article
  9. Patient and public involvement in general practice research.The British journal of general practice : the journal of the Royal College of General Practitioners · 2020
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

10 authors.

Stephen BarclayPrimary Care Unit, Department of Public Health and Primary Care, University of Cambridge, Cambridge, UK sigb2@medschl.cam.ac.uk.ORCID http://orcid.org/0000-0002-4505-7743
Emily MoranPrimary Care Unit, Department of Public Health and Primary Care, University of Cambridge, Cambridge, UK.
Sue BoasePrimary Care Unit, Department of Public Health and Primary Care, University of Cambridge, Cambridge, UK.
Margaret JohnsonPrimary Care Unit, Department of Public Health and Primary Care, University of Cambridge, Cambridge, UK.
Roberta LovickPrimary Care Unit, Department of Public Health and Primary Care, University of Cambridge, Cambridge, UK.
Jonathan GraffyPrimary Care Unit, Department of Public Health and Primary Care, University of Cambridge, Cambridge, UK.
Patrick L WhiteDepartment of Primary Care and Public Health Sciences, King's College London, London, UK.
Brenda DeboysClinical Research Network Eastern; Primary Care, Cambridge, UK.
Katy HarrisonCambridgeshire and Peterborough NHS Foundation Trust, Fulbourn, UK.
Brooke SwashPrimary Care Unit, Department of Public Health and Primary Care, University of Cambridge, Cambridge, UK.

Funding

Department of Health PB-PG-0909-20323
6 · The paper itself

Abstract

introductionPrimary care has a central role in palliative and end of life care: 45.6% of deaths in England and Wales occur under the care of primary care teams at home or in care homes. The Community Care Pathways at the End of Life (CAPE) study investigated primary care provided for patients in the final 6 months of life. This paper highlights the opportunities and challenges associated with primary palliative care research in the UK, describing the methodological, ethical, logistical and gatekeeping challenges encountered in the CAPE study and how these were addressed. THE STUDY

methodsUsing a mixed-methods approach, quantitative data were extracted from the general practitioner (GP) and district nurse (DN) records of 400 recently deceased patients in 20 GP practices in the East of England. Focus groups were conducted with some GPs and DNs, and individual interviews held with bereaved carers and other GPs and DNs. THE CHALLENGES ADDRESSED: Considerable difficulties were encountered with ethical permissions, with GP, DN and bereaved carer recruitment and both quantitative and qualitative data collection. These were overcome with flexibility of approach, perseverance of the research team and strong user group support. This enabled completion of the study which generated a unique primary palliative care data set.

Indexed as

ResearchCommunity Health ServicesEnglandGeneral PractitionersHospice CareHospicesHumansNursesNursing HomesPalliative CarePrimary Health CareTerminal CareWalescommunity nursinggeneral practicehome careprimary careresearch methodsterminal care

Identifiers

PMID30755396
PMCPMC6923936

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.