ArticleMDM policy & practice
Value Awareness: A New Goal for End-of-life Decision Making.
Article in MDM policy & practice. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 11 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
11 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Clarifying Values: An Updated and Expanded Systematic Review and Meta-Analysis.Medical decision making : an international journal of the Society for Medical Decision Making · 2021Pooled it
- Article
- The use of bioethical decision-making framework in the ICU of a public Brazilian hospital: a retrospective observational case series.BMC medical ethics · 2026Observational
- Determining intolerable suffering in the context of advance requests for medical assistance in dying.CMAJ : Canadian Medical Association journal = journal de l'Association medicale canadienne · 2026Article
- Hopes, expectations, and informational needs in patients undergoing advanced heart failure therapy evaluations.JHLT open · 2024Article
- "The Razor's Edge of Timing:" A Phenomenological Analysis of Decision-Making Processes Surrounding Medical Aid in Dying.International journal of public health · 2024Article
- Uncertainty: a neglected determinant of health behavior?Frontiers in psychology · 2023Article
- Optimism bias in understanding neonatal prognoses.Journal of perinatology : official journal of the California Perinatal Association · 2021Article
- MVP-Medical Situation, Values, and Plan: A Memorable and Useful Model for All Serious Illness Conversations.Journal of pain and symptom management · 2020Article
- Association of Family Ratings of Quality of End-of-Life Care With Stopping Dialysis Treatment and Receipt of Hospice Services.JAMA network open · 2019Observational
- The Mapping of Influencing Factors in the Decision-Making of End-of-Life Care Patients: A Systematic Scoping Review.Indian journal of palliative careArticle
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
2 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
The principal policy tool for respecting the preferences of patients facing serious illnesses that can prompt decisions regarding end-of-life care is the advance directive (AD) for health care. AD policies, decision aids for facilitating ADs, and clinical processes for interpreting ADs all treat patients as rational actors who will make appropriate choices, if provided relevant information. We review barriers to following this model, leading us to propose replacing the goal of rational choice with that of
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.