Trial reportPloS one2019
Development of a psycho-social intervention for reducing psychological distress among parents of children with intellectual disabilities in Malawi.
Trial report in PloS one, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 14 papers, 2 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
14 citing papers in PubMed, 2 syntheses or guidelines pooled it, 35 citations in OpenAlex.
- Effectiveness of Psychosocial Interventions on Stress, Anxiety, Depression, and Quality of Life in Parents of Children, Adolescents, and Young Adults With Cancer: A Meta-Analysis of RCTs.Nursing & health sciences · 2025Pooled it
- Interventions to Improve the Mental Health of Mothers of Children with a Disability: Systematic Review, Meta-analysis and Description of Interventions.Journal of autism and developmental disorders · 2021Pooled it
- Intellectual Disability Support: Traditional Healers' Views on Collaboration with Western-Trained Healthcare Practitioners.Transcultural psychiatry · 2026Article
- Prevalence and Predictors of Stress Among Caregivers of Children with Developmental Disorders.Journal of autism and developmental disorders · 2026Article
- Caregiver capabilities: Healthcare interventions for children with developmental disabilities.African journal of disability · 2025Review
- Effectiveness of Online Programmes for Family Carers of People with Intellectual Disabilities: Systematic Review of the International Evidence Base.Healthcare (Basel, Switzerland) · 2024Review
- Community-based models of care for adolescent and adult depression, suicidal behavior, anxiety, trauma, and substance use in Africa: a scoping review.Frontiers in psychology · 2024Article
- Prevalence and Associated Factors of Psychological Distress among Diabetic Patients at Thyolo District Hospital in Malawi: Hospital-Based Cross-Section Study [Response to Letter].Diabetes, metabolic syndrome and obesity : targets and therapy · 2024Article
- A Tracer Study of Psychosocial Counselling Graduates Working in Different Healthcare Facilities Across Malawi.Journal of multidisciplinary healthcare · 2023Article
- Improving the health-related quality of life of adult Nigerians living with cancer and their family caregivers: intervention development.Pilot and feasibility studies · 2022Article
- Setting priorities for people with intellectual disability/intellectual developmental disorders across the lifespan: a call to action by the World Psychiatric Association.BJPsych international · 2021Review
- Early intervention for children with developmental disabilities in low and middle-income countries - the case for action.International health · 2021Article
- Needs of families of children with intellectual and developmental disabilities in Addis Ababa.African journal of disability · 2020Article
- Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors at 3 institutions in 2 countries.
Funding
Abstract
backgroundThe burden of intellectual disabilities in low and middle income countries (LMIC) is high and is associated with parental psychological distress. There are few services for children and parents in most developing countries and few interventions have been created that target the psychological issues among parents of such children. This study aimed to develop a contextualized intervention to provide psychological support for parents of children with intellectual disabilities in an African setting.
methodsSix steps were adopted from the Medical Research Council framework for designing complex interventions. This include: literature review of similar interventions and models, qualitative studies to gain insights of lived experiences of parents of such children, a consensus process with an expert panel of professionals working with children with disabilities and piloting and pre-testing the draft intervention for its acceptability and practicability in this settings.
results21 intervention modules were found from a systematic search of the literature which were listed for possible use in our intervention along with four themes from our qualitative studies. An expert panel formed consensus on the eight most pertinent and relevant modules for our setting. This formed the intervention; "Titukulane." This intervention was piloted and found to have high acceptability and practicability when contextualized in the field.
conclusionThe use of a systematic framework for designing a complex intervention for supporting the mental health of parents of children with disabilities enables good acceptability and practicability for future use in low resource settings.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.