ArticleJournal of medical Internet research2019
Design and Development of a Person-Centered Patient Portal Using Participatory Stakeholder Co-Design.
Article in Journal of medical Internet research, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to 2 registered trials, which are not on this map. Cited by 48 papers, 2 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Implementation of an Electronic Patient-reported Measure of Barriers to Antiretroviral Therapy Adherence With the Opal Patient Portal: a Mixed Method Type 3 Hybrid Pilot Study at a Large Montreal HIV Clinic
Use of the Opal Patient Portal Application for Daily Follow-up of People at Home With COVID-19: The Opal-COVID Feasibility Study
Who cites it
48 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- Examining Challenges to Co-Design Digital Health Interventions With End Users: Systematic Review.Journal of medical Internet research · 2025Pooled it
- Effect of Digital Care Platforms on Quality of Care for Oncological Patients and Barriers and Facilitators for Their Implementation: Systematic Review.Journal of medical Internet research · 2021Pooled it
- Validating LLM judges for automated oversight of patient communication.medRxiv : the preprint server for health sciences · 2026Article
- User-Centred Interaction Design for Enhancing Professional Well-Being in Healthcare Environments.Healthcare (Basel, Switzerland) · 2026Article
- Applications of Smart Textiles for Ambulatory Electrocardiogram Monitoring: Scoping Review of the Literature.JMIR cardio · 2026Article
- Standing the test of time: diagnostic accuracy of the Edmonton Symptom Assessment System-Revised (ESAS-r) for anxiety and depression screening.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2026Article
- Consumer Co-Design of an Online Resource to Build Communication Skills of Health Consumers: Mixed Methods Study.JMIR formative research · 2025Article
- Design and evaluation patient portal for patients with HTLV-1.BMC medical informatics and decision making · 2025Article
- Facilitators and Barriers to Implementing a Patient Portal at a Dental Hospital From the Implementers' Perspectives: Qualitative Study.Journal of medical Internet research · 2025Article
- Who is your ideal peer mentor? A qualitative study to identify cancer patient preferences for a digital peer support app.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2025Article
- Identification and Classification Features of Patient Portal, A Systematic Review.Health science reports · 2025Review
- Implementing a Patient Portal for the Remote Follow-Up of Self-Isolating Patients With COVID-19 Infection Through Patient and Stakeholder Engagement (the Opal-COVID Study): Mixed Methods Pilot Study.Journal of participatory medicine · 2024Article
- Citizen involvement in research on technological innovations for health, care or well-being: a scoping review.Health research policy and systems · 2024Article
- Using action research and a community-academic partnership to understand clinical trial participation: a patient-centered perspective.Research involvement and engagement · 2024Article
- A Serious Game (MyDiabetic) to Support Children's Education in Type 1 Diabetes Mellitus: Iterative Participatory Co-Design and Feasibility Study.JMIR serious games · 2024Article
- Design and implementation of a prototype radiotherapy menu in a patient portal.Journal of applied clinical medical physics · 2024Article
- Engaging Cancer Care Physicians in Off-Label Drug Clinical Trials: Human-Centered Design Approach.JMIR formative research · 2024Article
- Adapting and Evaluating an AI-Based Chatbot Through Patient and Stakeholder Engagement to Provide Information for Different Health Conditions: Master Protocol for an Adaptive Platform Trial (the MARVIN Chatbots Study).JMIR research protocols · 2024Article
- Understanding the use of co-design methods for research involving older adults living with HIV: A scoping review protocol.PloS one · 2024Article
- Identification of the Needs and Preferences of Patients With Cancer for the Development of a Clinic App: Qualitative Study.JMIR cancer · 2023Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
7 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundPatient portals are increasingly accepted as part of standard medical care. However, to date, most patient portals provide just passive access to medical data. The use of modern technology such as smartphones and data personalization algorithms offers the potential to make patient portals more person-centered and enabling.
objectiveThe aim of this study is to share our experience in designing and developing a person-centered patient portal following a participatory stakeholder co-design approach.
methodsOur stakeholder co-design approach comprised 6 core elements: (1) equal coleadership, including a cancer patient on treatment; (2) patient preference determination; (3) security, governance, and legal input; (4) continuous user evaluation and feedback; (5) continuous staff input; and (6) end-user testing. We incorporated person-centeredness by recognizing that patients should decide for themselves their level of medical data access, all medical data should be contextualized with explanatory content, and patient educational material should be personalized and timely.
resultsUsing stakeholder co-design, we built, and are currently pilot-testing, a person-centered patient portal smartphone app called Opal.
conclusionsInclusion of all stakeholders in the design and development of patient-facing software can help ensure that the necessary elements of person-centeredness, clinician acceptability, and informatics feasibility are achieved.
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Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.