ArticleJournal of bioethical inquiry2019
Exploring Ethical Issues Related to Patient Engagement in Healthcare: Patient, Clinician and Researcher's Perspectives.
Article in Journal of bioethical inquiry, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 22 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
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Who cites it
22 citing papers in PubMed.
- The Ethical Foundations of Accompanying Patients: The Need for Institutionalization.Journal of bioethical inquiry · 2026Article
- Engaging patient communities in intracranial neuroscience research.medRxiv : the preprint server for health sciences · 2026Article
- 'Making little ethical decisions all the time': examining an ethical framework for consumer and community involvement in research, a co-produced ethnographic study.BMC medical ethics · 2025Article
- Patient and Public Involvement with Forced Migrants: An Empirical Exploration of Ethical Issues.Journal of bioethical inquiry · 2025Article
- Exploring the value and acceptability of a patient navigator program for people who inject drugs and are hospitalized for bacterial infections: patients', community organization and healthcare workers' perspectives.BMC infectious diseases · 2025Article
- Conducting Patient-Oriented Research in Pediatric Populations: A Narrative Review.Children (Basel, Switzerland) · 2024Review
- Professionals' Perceptions of the Colorectal Cancer Pathway: Results of a Co-Constructed Qualitative Study.Health expectations : an international journal of public participation in health care and health policy · 2024Article
- Evaluating the process of practice enhancement for exclusive breastfeeding (PEEB): a participatory action research approach for clinical innovation.International breastfeeding journal · 2024Article
- Four year evaluation of a parent advisory group to support a research program for knowledge translation in child health.Research involvement and engagement · 2024Article
- Implementing the patient partnership approach to quality improvement of care and services: A multiple case study protocol.PloS one · 2024Article
- Research Buddy partnership in a MD-PhD program: lessons learned.Research involvement and engagement · 2023Article
- Ethical Foundations of the Accompanying Patient's Role for an Enhanced Patient Experience: A Scoping Review.Journal of personalized medicine · 2022Article
- Engaging with patients in research on knowledge translation/implementation science methods: a self study.Research involvement and engagement · 2022Article
- Proceedings of the 10th annual deep brain stimulation think tank: Advances in cutting edge technologies, artificial intelligence, neuromodulation, neuroethics, interventional psychiatry, and women in neuromodulation.Frontiers in human neuroscience · 2022Article
- "I Want to Help Others Like Me": A Pilot Qualitative Study on Patients' Participation in a Screening for Distress Program.Journal of patient experience · 2022Article
- Beyond the role of participant: a firsthand account of the experiences of a patient-oriented research team.Research involvement and engagement · 2021Article
- Patient, Public, Consumer, and Community Engagement: From Consucrat to Representative Comment on "The Rise of the Consucrat".International journal of health policy and management · 2021Article
- Changing relationships: how does patient involvement transform professional identity? An ethnographic study.BMJ open · 2021Article
- The Participation of Older People in the Concept and Design Phases of Housing in The Netherlands: A Theoretical Overview.Healthcare (Basel, Switzerland) · 2021Article
- Ethical considerations for engaging frail and seriously ill patients as partners in research: sub-analysis of a systematic review.Research involvement and engagement · 2021Review
Corrections and comments
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Authors and funding
3 authors.
Funding
Abstract
Patient engagement in healthcare is increasingly discussed in the literature, and initiatives engaging patients in quality improvement activities, organizational design, governance, and research are becoming more and more common and have even become mandatory for certain health institutions. Here we discuss a number of ethical challenges raised by this engagement from patients from the perspectives of research, organizational/quality improvement practices, and patient experiences, while offering preliminary recommendations as to how to address them. We identified three broad categories of ethical issues that intersect between the different types of patient engagement: (1) establishing a shared vision about goals of patient engagement and respective roles; (2) the process and method of engaging with patients; and (3) practical aspects of patient engagement. To explain these issues, we build from our personal, professional, and academic experiences, as well as traditions such as pragmatism and hermeneutics that stress the importance of participation, empowerment, and engagement. Patient engagement can be highly valuable at numerous levels, but particular attention should be paid to the process of engaging with patients and related ethical issues. Some lessons from the literature on the ethics of participatory research can be translated to organizational and quality improvement practices.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.