Evidence map›Paper›PMID 30740140›Full record

ArticleJournal of communication in healthcare2018

Using social media to disseminate education about Alzheimer's prevention & treatment: a pilot study on Alzheimer's universe (www.AlzU.org).

Richard S Isaacson, Alon Seifan, Candace L Haddox, Monica Mureb, Aneela Rahman, Olivia Scheyer, Katherine Hackett, Emily Caesar, Jaclyn L Chen, Jon Isaacson and 3 more

Open access · greenAbstract read
In one paragraph

Article in Journal of communication in healthcare, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 13 papers.

0numbers the graph read from it
0cells of the map it votes in
13citing papers in PubMed
1.3field-weighted citation impact, top 18% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

13 citing papers in PubMed, 18 citations in OpenAlex.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

13 authors at 7 institutions in 1 country.

Richard S IsaacsonDepartment of Neurology, Weill Cornell Medicine, New York, NY, USA.
Alon SeifanDepartment of Neurology, Compass Health Systems, North Miami, FL, USA.
Candace L HaddoxDepartment of Internal Medicine, Mayo Clinic, Rochester, MN, USA.
Monica MurebDepartment of Neurology, Weill Cornell Medicine, New York, NY, USA.
Aneela RahmanDepartment of Neurology, Weill Cornell Medicine, New York, NY, USA.
Olivia ScheyerDepartment of Neurology, Weill Cornell Medicine, New York, NY, USA.
Katherine HackettDepartment of Neuropsychology, Temple University, Philadelphia, PA, USA.
Emily CaesarLoyola-Stritch School of Medicine, Chicago, IL, USA.
Jaclyn L ChenStony Brook University School of Medicine, New York, NY, USA.
Jon IsaacsonDepartment of Neurology, Weill Cornell Medicine, New York, NY, USA.
Mark McInnisWishbone Productions, Boston, MA, USA.
Lisa MosconiDepartment of Neurology, Weill Cornell Medicine, New York, NY, USA.
Joseph SafdiehDepartment of Neurology, Weill Cornell Medicine, New York, NY, USA.
Weill Cornell Medicine · USCornell University · USCompass (United States) · USLoyola University Chicago · USMayo Clinic in Arizona · USStony Brook University · USTemple University · US

Funding

Disparities in COVID Disease Severity and Outcomes in New York CityUL1TR002384 · NCATS · WEILL MEDICAL COLL OF CORNELL UNIV · PI JULIANNE L IMPERATO-MCGINLEY · 2017 to 2026
$86.2M
NCATS NIH HHS UL1 TR002384
6 · The paper itself

Abstract

backgroundThe use of social media may be a valuable tool for dissemination of patient education interventions. However, in Alzheimer's disease (AD), little data exists about the effectiveness, associated cost, or conditions for utilization.

methodsAlzheimer's Universe (www.AlzU.org) is an online educational portal that provides evidence-based educational content for the public and a variety of activities related to optimizing AD management. The primary goal of our study was to assess the effectiveness of using the social media platform Facebook.com as a tool to recruit subjects to visit AlzU.org via targeted advertising and evaluate the associated costs. Secondary outcomes included AlzU.org join rates, lesson and activity completion rates, user demographics and attitudes about the education research platform.

resultsA total of $706 generated 4268 visits to AlzU.org via a series of page posts promoted with targeted advertising to individuals with previously expressed interest in 'Alzheimer's disease,' to those who had 'liked' the Alzheimer's Association page, and followers of www.facebook.com/AlzheimersDisease. Advertising used different promotional taglines in the Facebook Advertising manager tool using 'Cost Per Click' and the 'Optimized for Engagement' settings. Across all strategies combined, 503 visitors joined AlzU.org (11.8% join rate), 412 engaged with at least one lesson/activity (82%), and 100 completed all available lessons and activities (19.8%). Users were primarily women (79.8%) and the most common age group was 50's (43.3%, range 22-92). The majority joined AlzU.org to learn more about AD prevention or treatment (66.3% and 65.3%, respectively). Over 90% were satisfied with their experience. DISCUSSION: Subjects were quickly and cost-effectively recruited to AlzU.org. Completion rates of education content and activities were adequate, and subjects were highly satisfied with their experiences. Overall, targeted advertising on Facebook.com was an effective means of disseminating AD education online.

Indexed as

Alzheimer’s caregiver educationalzheimer’s diseaseAlzheimer’s educationAlzheimer’s preventiondigital healthFacebookhealthcare educationhealth literacyneurology education researchpreventionsocial media

Identifiers

PMID30740140
PMCPMC6364853
OpenAlexW2803025173

What OpenQuestion holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.