ReviewHealth expectations : an international journal of public participation in health care and health policy2019
Clarifying the mechanisms and resources that enable the reciprocal involvement of seldom heard groups in health and social care research: A collaborative rapid realist review process.
Review in Health expectations : an international journal of public participation in health care and health policy, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 39 papers, 2 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
39 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- Does weight management research for adults with severe obesity represent them? Analysis of systematic review data.BMJ open · 2022Pooled it
- Successfully implementing a national electronic health record: a rapid umbrella review.International journal of medical informatics · 2020Pooled it
- Trial
- Article
- From input to impact: embedding PPI in computational ovarian cancer research.Research involvement and engagement · 2026Article
- Methods of Engaging Interest-Holders in Healthcare Evidence Syntheses: A Scoping Review.Cochrane evidence synthesis and methods · 2026Review
- Article
- The Role of Power in Co-Approaches to Health Research: Insights From Spain and the United Kingdom With a Rapid Review of Reviews.Health expectations : an international journal of public participation in health care and health policy · 2025Review
- Co-Designing an Engagement Strategy to Include the Voices of a Minority Group in Assessing the Quality of Maternity and Neonatal Care.Health expectations : an international journal of public participation in health care and health policy · 2025Article
- How are patient partners involved in health service research? A scoping review of reviews.Research involvement and engagement · 2025Review
- Developing a Theory of Change and Implementation Plan to implement a novel child- and family-centred outcome measure in paediatric palliative care.Palliative medicine · 2025Article
- Leveraging public engagement to improve healthcare quality: The role of community and stakeholder engagement in Colombia's National Quality of Care Strategy.PLOS global public health · 2025Article
- An umbrella review on how digital health intervention co-design is conducted and described.NPJ digital medicine · 2024Article
- Patient and public involvement in the design of an international clinical trial: real world experience.Research involvement and engagement · 2024Article
- Mechanisms for co-designing and co-producing health and social care: a realist synthesis.Research involvement and engagement · 2024Review
- Interrogating the effectiveness of service engagement for underserved populations in complex health and social care systems: towards an equitable engagement strategy.International journal for equity in health · 2024Article
- Facilitating choice when engaging young people with disabilities: reflections from co-researcher training.Research involvement and engagement · 2024Article
- Using the Power Wheel as a transformative tool to promote equity through spaces and places of patient engagement.BMJ open · 2024Article
- Experiences of participants in the co-design of a community-based health service for people with high healthcare service use.BMC health services research · 2024Article
- Co-design of health educational materials with people experiencing homelessness and support workers: a scoping review.Frontiers in oral health · 2024Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
11 authors.
Funding
Abstract
objectivePublic and patient involvement is increasingly embedded as a core activity in research funding calls and best practice guidelines. However, there is recognition of the challenges that prevail to achieve genuine and equitable forms of engagement. Our objective was to identify the mechanisms and resources that enable the reciprocal involvement of seldom heard groups in health and social care research.
methodsA rapid realist review of the literature that included: (a) a systematic search of CINAHL, PsycINFO, PubMed and Open Grey (2007-2017); (b) documents provided by expert panel members of relevant journals and grey literature. Six reference panels were undertaken with homeless, women's, transgender, disability and Traveller and Roma organizations to capture local insights. Data were extracted into a theory-based grid linking context to behaviour change policy categories. MAIN
resultsFrom the review, 20 documents were identified and combined with the reference panel summaries. The expert panel reached consensus about 33 programme theories. These relate to environmental and social planning (7); service provision (6); guidelines (4); fiscal measures (6); communication and marketing (4); and regulation and legislation (6).
conclusionsWhile there is growing evidence of the merits of undertaking PPI, this rarely extends to the meaningful involvement of seldom heard groups. The 33 programme theories agreed by the expert panel point to a variety of mechanisms and resources that need to be considered. Many of the programme theories identified point to the need for a radical shift in current practice to enable the reciprocal involvement of seldom heard groups.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.