Evidence map›Paper›PMID 30726534›Full record

ArticleJournal of autism and developmental disorders2019

What Drives Detection and Diagnosis of Autism Spectrum Disorder? Looking Under the Hood of a Multi-stage Screening Process in Early Intervention.

R Christopher Sheldrick, Elizabeth Frenette, Juan Diego Vera, Thomas I Mackie, Frances Martinez-Pedraza, Noah Hoch, Abbey Eisenhower, Angel Fettig, Alice S Carter

Abstract read
In one paragraph

Article in Journal of autism and developmental disorders, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 25 papers.

0numbers the graph read from it
0cells of the map it votes in
25citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

25 citing papers in PubMed.

  1. Trial
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  6. Unpacking the prevalence: A warning against overstating the recently narrowed gap for Black autistic youth.Autism research : official journal of the International Society for Autism Research · 2024
    Article
  7. The influence of loss to follow-up in autism screening research: Taking stock and moving forward.Journal of child psychology and psychiatry, and allied disciplines · 2024
    Article
  8. Article
  9. Article
  10. Article
  11. Short report: Call to action for autism clinicians in response to anti-Black racism.Autism : the international journal of research and practice · 2022
    Article
  12. Article
  13. Article
  14. Article
  15. Article
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors.

R Christopher SheldrickDepartment of Health Law, Policy and Management, School of Public Health, Boston University, One Silber Way, Boston, MA, 02215, USA. rshldrck@bu.edu.ORCID http://orcid.org/0000-0003-0534-856X
Elizabeth FrenetteDepartment of Psychology, University of Massachusetts Boston, Boston, MA, USA.
Juan Diego VeraDepartment of Psychology, University of Massachusetts Boston, Boston, MA, USA.
Thomas I MackieRutgers School of Public Health, Piscataway, NJ, USA.
Frances Martinez-PedrazaDepartment of Psychology, Florida International University, Miami, FL, USA.
Noah HochDepartment of Psychology, University of Massachusetts Boston, Boston, MA, USA.
Abbey EisenhowerDepartment of Psychology, University of Massachusetts Boston, Boston, MA, USA.
Angel FettigDepartment of Psychology, University of Massachusetts Boston, Boston, MA, USA.
Alice S CarterDepartment of Psychology, University of Massachusetts Boston, Boston, MA, USA.

Funding

Building a theoretic framework and measures clearinghouse to assess risks and benefits of ASD screening for young children with autismR01MH104400 · NIMH · UNIVERSITY OF MASSACHUSETTS BOSTON · PI CARTER, ALICE S., SHELDRICK, RADLEY C. · 2014 to 2018
$4.3M
National Institute of Mental Health R01MH104400NIMH NIH HHS R01 MH104400
6 · The paper itself

Abstract

U.S. guidelines for detecting autism emphasize screening and also incorporate clinical judgment. However, most research focuses on the former. Among 1,654 children participating in a multi-stage screening protocol for autism, we used mixed methods to evaluate: (1) the effectiveness of a clinical decision rule that encouraged further assessment based not only on positive screening results, but also on parent or provider concern, and (2) the influence of shared decision-making on screening administration. Referrals based on concern alone were cost-effective in the current study, and reported concerns were stronger predictors than positive screens of time-to-complete referrals. Qualitative analyses suggest a dynamic relationship between parents' concerns, providers' concerns, and screening results that is central to facilitating shared decision-making and influencing diagnostic assessment.

Indexed as

Decision MakingAutism Spectrum DisorderChildChild, PreschoolClinical Decision-MakingDelivery of Health CareEarly Intervention, EducationalFemaleHumansMaleMass ScreeningParentsReferral and ConsultationAutism spectrum disorderCostsDecision-makingProcess assessmentScreening

Identifiers

PMID30726534
PMCPMC6595501

What OpenQuestion holds

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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.