Evidence map›Paper›PMID 30722800›Full record

ArticleInternational psychogeriatrics2019

Well-being in dementia: a cross-sectional dyadic study of the impact of multiple dimensions of strain on persons living with dementia and their family care partners.

Lyndsey M Miller, Jeffrey A Kaye, Karen S Lyons, Christopher S Lee, Carol J Whitlatch, Michael S Caserta

Abstract read
In one paragraph

Article in International psychogeriatrics, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 14 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
14citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

14 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Lyndsey M MillerDepartment of Neurology, Layton Aging & Alzheimer's Disease Center,Oregon Health & Science University,Portland, OR,USA.ORCID 0000-0003-3443-3376
Jeffrey A KayeDepartment of Neurology, Layton Aging & Alzheimer's Disease Center,Oregon Health & Science University,Portland, OR,USA.
Karen S LyonsWilliam F. Connell School of Nursing,Boston College,Chestnut Hill, MA,USA.
Christopher S LeeWilliam F. Connell School of Nursing,Boston College,Chestnut Hill, MA,USA.
Carol J WhitlatchCenter for Research and Education,Benjamin Rose Institute on Aging,Cleveland, OH,USA.
Michael S CasertaCollege of Nursing & Center on Aging,The University of Utah,Salt Lake City, UT,USA.

Funding

OREGON CLINICAL AND TRANSLATIONAL SCIENCE INSTITUTEUL1RR024140 · NCRR · OREGON HEALTH & SCIENCE UNIVERSITY · PI ORWOLL, ERIC S. · 2006 to 2011
$61.1M
Outreach, Recruitment and Education CoreP30AG008017 · NIA · OREGON HEALTH & SCIENCE UNIVERSITY · PI WOLTJER, RANDALL L · 1990 to 2019
$27.7M
Pilot CoreP30AG024978 · NIA · OREGON HEALTH & SCIENCE UNIVERSITY · PI KAYE, JEFFREY A · 2004 to 2023
$9.0M
Interdisciplinary Training in Cancer, Caregiving and End-of-Life CareT32NR013456 · NINR · UNIVERSITY OF UTAH · PI ELLINGTON, LEE A, MOONEY, KATHLEEN H · 2013 to 2022
$3.4M
Preparing for future dementia care: A study of hospitalized patient-family dyadsF31NR015195 · NINR · OREGON HEALTH & SCIENCE UNIVERSITY · PI ANDERSON, LYNDSEY MEDORA · 2014 to 2015
$86k
NCRR NIH HHS UL1 RR024140NIA NIH HHS P30 AG008017NIA NIH HHS P30 AG024978NINR NIH HHS F31 NR015195NINR NIH HHS T32 NR013456
6 · The paper itself

Abstract

ABSTRACTBackground and Purpose:The impact of dementia-related stressors and strains have been examined for their potential to threaten the well-being of either the person with dementia or the family care partner, but rarely have studies considered the dyadic nature of well-being in dementia. The purpose of this study was to examine the dyadic effects of multiple dimensions of strain on the well-being of dementia care dyads.

methodsUsing multilevel modeling to account for the inter-relatedness of individual well-being within dementia care dyads, we examined cross-sectional responses collected from 42 dyads comprised of a hospitalized patient diagnosed with a primary progressive dementia (PWD) and their family care partner (CP). Both PWDs and CPs self-reported on their own well-being using measures of quality of life (QOL-Alzheimer's Disease scale) and depressive symptoms (Center for Epidemiological Studies Depression Scale).

resultsIn adjusted models, the PWD's well-being (higher QOL and lower depressive symptoms) was associated with significantly less strain in the dyad's relationship. The CP's well-being was associated with significantly less care-related strain and (for QOL scale) less relationship strain.

conclusionsUnderstanding the impact of dementia on the well-being of PWDs or CPs may require an assessment of both members of the dementia care dyad in order to gain a complete picture of how dementia-related stressors and strains impact individual well-being. These results underscore the need to assess and manage dementia-related strain as a multi-dimensional construct that may include strain related to the progression of the disease, strain from providing care, and strain on the dyad's relationship quality.

Indexed as

Family RelationsAdaptation, PsychologicalAgedAged, 80 and overCaregiversDementiaDepressionFemaleHumansMaleMiddle AgedMultilevel AnalysisMultivariate AnalysisPsychiatric Status Rating ScalesQuality of LifeSelf Reportdementiadepressiondyadic analysisfamily caregivingquality-of-lifeStress Process Model

Identifiers

PMID30722800
PMCPMC6579645

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.