ArticleEuropean journal of human genetics : EJHG2019
Autonomous decision-making for antenatal screening in Pakistan: views held by women, men and health professionals in a low-middle income country.
Article in European journal of human genetics : EJHG, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 16 papers, 2 of them syntheses that pooled it.
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Who cites it
16 citing papers in PubMed, 2 syntheses or guidelines pooled it, 24 citations in OpenAlex.
- Women's autonomy in healthcare decision making: a systematic review.BMC women's health · 2023Pooled it
- Narrative synthesis systematic review of Pakistani women's health outcomes from primary care interventions.BMJ open · 2022Pooled it
- Cocreating a Digital Patient Preparedness Tool for International Students Accessing Primary Care in Germany: A Convergent Methods Study Within the Health CASCADE Network.JMIR human factors · 2026Article
- The Dynamics of Hospitalization Expenses and Health Insurance: A Finite Mixture Model Approach.The European journal of health economics : HEPAC : health economics in prevention and care · 2026Article
- Comparing TCIM use and patient satisfaction in germany: impact of health self-management across migration backgrounds.Journal of health, population, and nutrition · 2026Article
- Disparities in Toxoplasmosis, "Other" Infections (Syphilis, HIV, Hepatitis Viruses, Varicella-Zoster Virus, and Parvovirus B19), Rubella, Cytomegalovirus, and Herpes Simplex Virus Seroprevalence and Childbirth Experiences between Migrant and Nonmigrant Pregnant Women in Italy: A Single-Center Study.The American journal of tropical medicine and hygiene · 2025Observational
- Reimagining Assent: When Things Get Lost in Translation in International Pediatric Research.Asian bioethics review · 2025Article
- Factors associated with decision-making autonomy in healthcare utilization among married women from the Indonesia demographic health survey 2017.Scientific reports · 2025Article
- Determinants of early mental health help-seeking among women in Bangladesh: A nationally representative bootstrapped regression analysis.PLOS mental health · 2025Article
- Inequality in Afghanistan in the use of prenatal healthcare services according to the sex of newborns.Journal of rural medicine : JRM · 2024Article
- Acceptance of COVID-19 vaccination during pregnancy among Thai pregnant women and their spouses: a prospective survey.Reproductive health · 2022Article
- Urban-rural disparities of antenatal care in South East Asia: a case study in the Philippines and Indonesia.BMC public health · 2021Article
- A scoping review of Q-methodology in healthcare research.BMC medical research methodology · 2021Article
- Decision making on antenatal screening results: A comparative Q-method study of women from two Chinese cities.Health expectations : an international journal of public participation in health care and health policy · 2021Article
- Exploring the influence of socio-cultural factors and environmental resources on the health related quality of life of children and adolescents after congenital heart disease surgery: parental perspectives from a low middle income country.Journal of patient-reported outcomes · 2020Article
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Corrections and comments
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Authors and funding
7 authors at 4 institutions in 4 countries.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Prenatal genetic technologies now are being implemented in LMICs, and while there is much research on the ethical, legal and social implications of such technologies in Western countries, there is a paucity of such research in LMICs, which have diverse cultural, religious, political, financial and health service contexts. This study aimed to explore views about women's autonomous decision-making for antenatal screening held by women, men and healthcare professionals (HCPs) in Pakistan. A Q-methodology study was conducted during June 2016 to January 2018 in Lahore, Pakistan. A total of 137 participants (60 women, 57 men, 20 HCPs) rank-ordered 41 statements. Following by-person factor analysis, four distinct viewpoints were identified. Three of these represent views held by women and men only: autonomous decision-making requires directive advice from doctors; autonomous decision-making requires the husband's involvement, where independent decision-making by the woman is considered culturally inappropriate; and opting for antenatal screening is a foregone decision. One contrasting viewpoint represents predominantly HCPs: autonomous decision-making is the couple's responsibility. These findings highlight that Western approaches to facilitating women's autonomy for antenatal screening are unlikely to be suitable for use in Pakistan. Instead, culturally appropriate practice guidelines are needed in LMICs to enable HCPs to adopt shared decision-making approaches in a way that enables them to facilitate active and joint decision-making by couples, while ensuring women exercise their autonomy.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.