ArticleQuality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation2019
Beyond care burden: associations between positive psychological appraisals and well-being among informal caregivers in Europe.
Article in Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 23 papers.
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Who cites it
23 citing papers in PubMed, 57 citations in OpenAlex.
- Internet-Based Cognitive Behavioral Therapy for Informal Caregivers: Randomized Controlled Pilot Trial.Journal of medical Internet research · 2021Trial
- When caring comes at a cost: Psychological wellbeing of unpaid and paid carers and the role of social expenditure.Journal of European social policy · 2026Article
- Stress-related cognitive-perceptual tendencies and their associations with psychological quality of life in informal Romanian schizophrenia caregivers: an exploratory ESI-based analysis.Medicine and pharmacy reports · 2026Article
- Caregiving Appraisal and Social Support: Key Determinants of Quality of Life Among Caregivers of Individuals with Alcohol Use Disorder.Annals of neurosciences · 2026Article
- Understanding Diverse Caregiver Experiences and Their Impact on Caregiver Burden in Multiple Sclerosis.International journal of MS care · 2025Article
- The impact of informal caregiving on the mental health of health care workers during the COVID-19 pandemic-cross-sectional and longitudinal results from the VOICE study.Frontiers in public health · 2025Article
- Exploring the experience of informal caregivers of dependent elderly people with the well-being valuation method.Frontiers in psychiatry · 2025Article
- Care burden and associated factors among caregivers of patients with bipolar type I disorder.BMC primary care · 2024Article
- Needs of Family Caregivers of People with Lower Limb Amputations: A Scoping Review.Behavioral sciences (Basel, Switzerland) · 2024Article
- Long-term care needs and the risk of household poverty across Europe: a comparative secondary data study.BMC geriatrics · 2024Article
- The relationship between social support, coping strategies and psychological distress and positive mental well-being in carers of people with borderline personality disorder.Borderline personality disorder and emotion dysregulation · 2023Article
- The association between social support provision, psychological capital, subjective well-being and sense of indebtedness among undergraduates with low socioeconomic status.BMC psychology · 2023Article
- Effects of Childcare, Work, and Caregiving Intensity on Male and Female Family Caregivers.The journals of gerontology. Series B, Psychological sciences and social sciences · 2023Article
- Article
- The Clinical and Economic Impact of Employees Who Are Care Partners of Patients with Multiple Sclerosis by Disease Severity.Journal of health economics and outcomes research · 2023Article
- Unmet needs, anxiety, depression, and quality of life among caregivers of adolescents and young adults with cancer: A cross-sectional study.Asia-Pacific journal of oncology nursing · 2022Article
- Psychosocial and financial impacts for carers of those with eating disorders in New Zealand.Journal of eating disorders · 2022Article
- Caregiver Burden in Schizophrenia and Autism Spectrum Disorders: A Comparative Study.Psychiatry investigation · 2021Article
- Moving beyond family: unequal burden across mental health patients' social networks.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2021Article
- Informal care and the impact on depression and anxiety among Swedish adults: a population-based cohort study.BMC public health · 2021Article
Corrections and comments
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Authors and funding
3 authors at 2 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
purposeThe burden of caring for a family member or friend can have a negative impact on caregiver health and well-being, yet caring can also have positive consequences. Understanding the factors that may enhance caregiver well-being is merited.
methodsWe used data gathered from the European Quality of Life Survey (EQLS). Using complete case analysis followed by multiple imputation analysis, a series of multilevel regression models were developed to systematically explore the role of three distinct blocks of factors in predicting caregiver well-being as measured by the WHO-5 well-being index: (1) sociodemographic and health factors, (2) care and burden-related factors, and (3) psychological and social appraisals. Differences between frequent caregivers and the general population were also compared on all measures.
results36,908 respondents took part in EQLS, with 4171 (11%) identifying as frequent carers. While frequent caregivers reported lower well-being compared to the remaining population, most were happy with the amount of time spent caring. Our model explained approximately 32% of variance in well-being scores. After examining the role of known risk factors, all positive psychological appraisals were associated with higher well-being (p < .001). In order of magnitude these were optimism, perceived autonomy, sense of purpose, resilience, and perceived levels of social inclusion. Self-rated health was the strongest predictor of well-being while female carers and those with high levels of various burden measures reported lower well-being.
conclusionsFindings suggest that caregiver well-being is influenced by more than simply the burden of care. As well as attempting to reduce burden, interventions aimed at supporting caregivers could focus on fostering more positive appraisals to enhance well-being in this group.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.