ArticleJournal of cancer education : the official journal of the American Association for Cancer Education2020
Indian Cancer Patients' Needs, Perceptions of, and Expectations from their Support Network: a Qualitative Study.
Article in Journal of cancer education : the official journal of the American Association for Cancer Education, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 7 papers.
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7 citing papers in PubMed, 21 citations in OpenAlex.
- Prevalence and factors associated with non-medical needs among adult cancer patients attending a tertiary care center in Kerala, India. A cross-sectional study.Frontiers in public health · 2025Article
- Experiences of prognosis disclosure versus nondisclosure among family caregivers of persons with advanced cancer.Death studies · 2024Article
- Oncologists' experience with discussing cancer prognosis with patients and families: perspectives from India.Translational behavioral medicine · 2021Article
- Patient-reported anxiety and depression measures for use in Indian head and neck cancer populations: a psychometric evaluation.Journal of patient-reported outcomes · 2021Article
- The Question-prompt list (QPL): Why it is needed in the Indian oncology setting?Cancer reports (Hoboken, N.J.) · 2021Review
- The Weight of Words: Indian Physicians' Perspectives on Patient Communication to Promote Diabetes Adherence.Indian journal of endocrinology and metabolismArticle
- An Ethnographic Study of the Moral Experiences of Children with Cancer in New Delhi, India.Global qualitative nursing researchArticle
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Authors and funding
4 authors at 3 institutions in 2 countries.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Psycho-oncology research in India reveals that family caregivers and oncologists are primary medical decision-makers frequently acting on behalf of the patient. Thus, patients are rarely asked about their wants and needs. This study aimed to understand Indian cancer patients' needs and expectations from their support network. Twenty-six cancer patients participated in semi-structured interviews exploring patients' needs, perceptions of their support network and the type of support they would prefer, and their experiences of receiving this support. The interviews were analyzed using Interpretive Phenomenological Analysis. Emergent themes included: (i) role of the oncologist: being the primary medical decision-maker, communicating in a style consistent with patient preferences; (ii) role of the immediate family: being emotionally available, helping with navigating the hospital system, aiding in medical adherence; (iii) role of relatives and friends: giving advice and providing tangible aid and services; and (iv) role of other cancer patients: helping with coping with the illness. The study highlights Indian patients' ability to define their supportive network and assign specific roles to them. The study implies the need to develop communication training programs and peer-to-peer support groups to address patients' unmet communication needs and aid in coping.
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