ArticleInternational psychogeriatrics2019
Unmet needs in community-living persons with dementia are common, often non-medical and related to patient and caregiver characteristics.
Article in International psychogeriatrics, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT05406921 (Implementation of MIND at Home Program in Primary Care for People Living With Dementia), which is not on this map. Cited by 74 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Implementation of MIND at Home Program in Primary Care for People Living With Dementia: A Pilot Study
Who cites it
74 citing papers in PubMed.
- Identifying and Addressing Unmet Needs in Dementia: The Role of Care Access and Psychosocial Support.International journal of geriatric psychiatry · 2025Trial
- Caregiving management needs and predictors for family caregivers of persons with dementia: a cross-sectional study.BMC geriatrics · 2024Trial
- Healthcare Needs Patterns and Pattern-Predicting Factors in Dementia: Results of the Comprehensive, Computerized Unmet Needs Assessment from the Randomized, Controlled Interventional Trial InDePendent.Journal of Alzheimer's disease : JAD · 2024Trial
- Sociodemographic and Clinical Characteristics of People Living with Dementia and Their Associations with Unmet Healthcare Needs: Insights from the Baseline Assessment of the InDePendent Study.Journal of Alzheimer's disease : JAD · 2024Trial
- Effect of need-based care on behavioural and psychological symptoms in residents with dementia and formal caregivers' distress in nursing homes: a three-arm cluster randomized controlled trial.European geriatric medicine · 2023Trial
- Exploring the experiences and needs in everyday life of spouse carers of persons with dementia.International journal of qualitative studies on health and well-being · 2026Article
- Validity testing of the Benjamin Rose Unmet Need Instrument: a comprehensive measure for dementia caregiving.The Gerontologist · 2026Article
- Unmet social needs of community-living older adults with dementia: A scoping review.Journal of Alzheimer's disease : JAD · 2026Article
- Multimorbidity, health service use, and health insurance by socioeconomic groups in 31 countries: A multi-cohort study.PLoS medicine · 2026Article
- Spousal Discrepancies in Perceived Needs of People Living with Alzheimer's Disease: A Mixed-Methods Study of Caregivers' Perspective Taking and Dyadic Communication.Journal of applied gerontology : the official journal of the Southern Gerontological Society · 2026Article
- Quality of Medicare Skilled Home Health for People Living With Dementia in the US: National Patterns and Implications.Journal of the American Geriatrics Society · 2026Article
- Racial and Ethnic Differences in Caregiving Networks and Unmet Care Needs Among People Living With Cognitive Impairment.Research on aging · 2026Article
- Identifying salient behavioral health access and social determinant of health factors among a Latino population with uncontrolled diabetes living on the U.S.-Mexico border.Frontiers in public health · 2026Article
- Virtual, Nurse-Led Early Primary Palliative Care Intervention (ELICIT) for Community-Dwelling Older Adults With Cognitive Impairment: Protocol for a Randomized Controlled Trial.JMIR research protocols · 2025Article
- Placing public health onto the Alzheimer's disease and related dementias public policy platform.The Gerontologist · 2025Article
- Patient and family perceptions of rural primary care interprofessional memory clinics for diagnosis and management of dementia: a mixed methods study.BMC health services research · 2025Article
- Unmet Needs in Dementia Care: The Predictive Role of Caregiver Challenges.International journal of geriatric psychiatry · 2025Article
- Dementia in primary care: a qualitative study with general practitioners and caregivers with and without migration backgrounds.BMC primary care · 2025Article
- Caregiving network precarity among community-living, dually enrolled persons with dementia.The Gerontologist · 2025Article
- Family Caregiver Availability and Capacity Associated With Home Health Service Types for Patients With Dementia.Journal of the American Medical Directors Association · 2025Article
14 more citing papers are in PubMed but not listed here.
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
11 authors.
Funding
Abstract
objectiveUnderstanding which characteristics of persons with dementia (PWD) and their caregivers are associated with unmet needs can inform strategies to address those needs. Our purpose was to determine the percentage of PWD having unmet needs and significant correlates of unmet needs in PWD.
designCross-sectional data were analyzed using bivariate and hierarchical multiple linear regression analyses.
settingParticipants lived in the greater Baltimore, Maryland and Washington DC suburban area.
participantsA sample of 646 community-living PWD and their informal caregivers participated in an in-home assessment of dementia-related needs. MEASUREMENTS: Unmet needs were identified using the Johns Hopkins Dementia Care Needs Assessment. Correlates of unmet needs were determined using demographic, socioeconomic, clinical, functional and quality of life characteristics of the PWD and their caregivers.
resultsPWD had a mean of 10.6 (±4.8) unmet needs out of 43 items (24.8%). Unmet needs were most common in Home/Personal Safety (97.4%), General Health Care (83.1%), and Daily Activities (73.2%) domains. Higher unmet needs were significantly related to non-white race, lower education, higher cognitive function, more neuropsychiatric symptoms, lower quality of life in PWD, and having caregivers with lower education or who spent fewer hours/week with the PWD.
conclusionsUnmet needs are common in community-living PWD, and most are non-medical. Home-based dementia care can identify and address PWD's unmet needs by focusing on care recipients and caregivers to enable PWD to remain safely at home.
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Registered trials
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