ArticleHealth expectations : an international journal of public participation in health care and health policy2019
An Australian community jury to consider case-finding for dementia: Differences between informed community preferences and general practice guidelines.
Article in Health expectations : an international journal of public participation in health care and health policy, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 12 papers, 1 of them a synthesis that pooled it.
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Who cites it
12 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Attitudes and Preferences Towards Screening for Dementia with a Focus on Ethnic Minority and Low Socio-Economic Groups: A Systematic Review of Research Studies Written in the English Language.Journal of Alzheimer's disease : JAD · 2024Pooled it
- Chronic kidney disease and the alternative labels used by GPs in Australia: a qualitative interview study.BJGP open · 2025Article
- IMPAACT: IMproving the PArticipAtion of older people in policy decision-making on common health CondiTions - a study protocol.BMJ open · 2024Article
- Exploring barriers to dementia screening and management services by general practitioners in China: a qualitative study using the COM-B model.BMC geriatrics · 2023Article
- Trading off accuracy and explainability in AI decision-making: findings from 2 citizens' juries.Journal of the American Medical Informatics Association : JAMIA · 2021Article
- A Community Jury on initiating weight management conversations in primary care.Health expectations : an international journal of public participation in health care and health policy · 2021Article
- Should free-text data in electronic medical records be shared for research? A citizens' jury study in the UK.Journal of medical ethics · 2020Article
- Exploring women's priorities for the potential consequences of a gestational diabetes diagnosis: A pilot community jury.Health expectations : an international journal of public participation in health care and health policy · 2020Article
- Community perspectives on the benefits and risks of technologically enhanced communicable disease surveillance systems: a report on four community juries.BMC medical ethics · 2020Article
- Why 'case finding' is bad science.Journal of the Royal Society of Medicine · 2020Article
- An Australian community jury to consider case-finding for dementia: Differences between informed community preferences and general practice guidelines.Health expectations : an international journal of public participation in health care and health policy · 2019Article
- Developing and applying a deductive coding framework to assess the goals of Citizen/Community Jury deliberations.Health expectations : an international journal of public participation in health care and health policy · 2019Article
Corrections and comments
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Authors and funding
10 authors.
Funding
Abstract
backgroundCase-finding for dementia is practised by general practitioners (GPs) in Australia but without an awareness of community preferences. We explored the values and preferences of informed community members around case-finding for dementia in Australian general practice. DESIGN, SETTING AND
participantsA before and after, mixed-methods study in Gold Coast, Australia, with ten community members aged 50-70.
interventionA 2-day citizen/community jury. Participants were informed by experts about dementia, the potential harms and benefits of case-finding, and ethical considerations. PRIMARY AND SECONDARY OUTCOMES: We asked participants, "Should the health system encourage GPs to practice 'case-finding' of dementia in people older than 50?" Case-finding was defined as a GP initiating testing for dementia when the patient is unaware of symptoms. We also assessed changes in participant comprehension/knowledge, attitudes towards dementia and participants' own intentions to undergo case-finding for dementia if it were suggested.
resultsParticipants voted unanimously against case-finding for dementia, citing a lack of effective treatments, potential for harm to patients and potential financial incentives. However, they recognized that case-finding was currently practised by Australian GPs and recommended specific changes to the guidelines. Participants increased their comprehension/knowledge of dementia, their attitude towards case-finding became less positive, and their intentions to be tested themselves decreased.
conclusionOnce informed, community jury participants did not agree case-finding for dementia should be conducted by GPs. Yet their personal intentions to accept case-finding varied. If case-finding for dementia is recommended in the guidelines, then shared decision making is essential.
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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.