ArticleInternational journal of qualitative studies on health and well-being2018
"What matters to you?" A longitudinal qualitative study of Norwegian patients' perspectives on their pathways with colorectal cancer.
Article in International journal of qualitative studies on health and well-being, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 14 papers.
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Who cites it
14 citing papers in PubMed, 30 citations in OpenAlex.
- From diagnosis to treatment: patients' attitudes toward cancer care.Frontiers in psychology · 2026Article
- From diagnosis to survivorship: Exploring health trajectories of cancer patients in India through a life course perspective.Palliative care and social practice · 2026Article
- Patient experiences with collaborative practices between primary and specialized care in Norwegian cancer pathways: a qualitative study.BMC health services research · 2025Article
- Because Doing "It" Matters to Patients: Development and Evaluation of a What Matters to Me Tool That Elicits Patients' Priorities to Support Cancer Treatment Shared Decision-Making.Cancer medicine · 2025Article
- Motivational Interviewing is "Journal of patient experience · 2025Article
- A qualitative exploration of the patient journey in axial spondyloarthritis towards a people-centered understanding.Scientific reports · 2024Article
- 'Don't freak out if you get a letter saying cancer patient pathways!': Communication work between different demands in cancer care.Health (London, England : 1997) · 2024Article
- Lost in the loop - a qualitative study on patient experiences of care in standardized cancer patient pathways.BMC health services research · 2023Article
- Eliciting patients' healthcare goals and concerns: Do questions influence responses?Chronic illness · 2022Article
- The Factors for Success and Lack of Success in the Breast Cancer Patient Care Pathway: A Qualitative Study From the Health Care Staff Perspective.European journal of breast health · 2022Article
- Crossing knowledge boundaries: health care providers' perceptions and experiences of what is important to achieve more person-centered patient pathways for older people.BMC health services research · 2021Article
- What matters when asking, "what matters to you?" - perceptions and experiences of health care providers on involving older people in transitional care.BMC health services research · 2020Article
- Patient pathways as social drama: a qualitative study of cancer trajectories from the patient's perspective.International journal of qualitative studies on health and well-being · 2019Article
- Early postoperative intraperitoneal chemotherapy for lower gastrointestinal neoplasms with peritoneal metastasis: a systematic review and critical analysis.Pleura and peritoneum · 2019Review
Corrections and comments
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Authors and funding
3 authors at 2 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
purposePerson-centred care (PCC) is a well-acknowledged goal throughout the western world both within the health care services sector and for the patients themselves. To be able to create a future health care system that includes improved PCC, we need more in-depth knowledge of what matters to patients, how "what matters" might change over time, and tentative descriptions of commonalities across patients' perspectives. The aim of this study is to contribute to this knowledge base.
methodsWe conducted a qualitative interview series over one year with nine Norwegian patients who were recently diagnosed with rectal cancer tumor-node-metastasis stage I-III.
resultsWe found that: (1) patients have an initial focus on "biological goals" and conventional treatment; (2) pathways are unique and dynamic; (3) family and friends affected patient pathways positively with respect to meaningfulness and quality of life, but for some participants also negatively because there were heavy burdens of caretaking; (4) receiving help in the health care system depended on the patients' navigation skills; (5) pluralism in health-seeking behaviour was important in all patient pathways.
conclusionLong lasting illness may be a dynamic and complex journey. These results represent some features of a pathway with cancer and are important because they contribute with knowledge about what matters most seen from the cancer patients' point of view.
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