ArticleInternational journal of qualitative studies on health and well-being2018
That mr. Alzheimer… you never know what he's up to, but what about me? A discourse analysis of how Swedish spouse caregivers can make their subject positions understandable and meaningful.
Article in International journal of qualitative studies on health and well-being, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 7 papers.
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Who cites it
7 citing papers in PubMed.
- Perceived Importance of Types and Characteristics of Support to Informal Caregivers among Spouse Caregivers of Persons with Dementia in Sweden: A Cross-Sectional Questionnaire-Based Study.International journal of environmental research and public health · 2024Article
- Functioning and Disability in Community-Living People with Perceived Cognitive Impairment or Dementia: A Mixed Methods Study using the World Health Organization Disability Assessment Schedule.Journal of rehabilitation medicine · 2023Article
- Through Thick and Thin: The Meaning of Dementia for the Intimacy of Ageing Couples.Healthcare (Basel, Switzerland) · 2022Article
- Negative Impact and Positive Value of Caregiving in Spouse Carers of Persons with Dementia in Sweden.International journal of environmental research and public health · 2022Article
- Diversity, preventive work and education-matters of health and well-being in firefighter discourse.International journal of qualitative studies on health and well-being · 2020Article
- How Children of Parents With Dementia Can Make Their Subject Positions Understandable and Meaningful.Qualitative health research · 2020Article
- Becoming a Family Caregiver to a Person With Dementia: A Literature Review on the Needs of Family Caregivers.SAGE open nursingReview
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Authors and funding
3 authors.
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No grant is acknowledged in the PubMed record.
Abstract
The spouses of people suffering from dementia are commonly first-in-line caregivers. This can have a considerable effect on their own lives, health and marriages. Several studies have focused on spouses' experiences, but very few have focused in any depth on their descriptions of themselves as subjects. Therefore, the aim of this study is to describe how spouse caregivers can express themselves when living with and caring for their partners with dementia. The study has a qualitative approach with a discourse analysis design and uses analytical tools such as rhetoric, subject positions and categorization. The results reveal three subject positions: as an actor, as a parent and as a survivor. The results show that as spouses struggle with external and internal clashes as subjects, they therefore need to develop coping strategies. They also experience pronounced loneliness and a risk to their own health. There is thus a need to support these spouses as individuals in their differing and changing needs.
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