SynthesisPloS one2019
Assessment of patient information needs: A systematic review of measures.
Synthesis in PloS one, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 17 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
17 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Pooled it
- Impact of health information prescription in thyroid cancer.Journal of the Medical Library Association : JMLA · 2026Article
- Information Needs of Australian Families Living with Craniosynostosis: A Qualitative Study.The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association · 2026Article
- Recurrent aphthous stomatitis information on TikTok: satisfactory or substandard?Irish journal of medical science · 2025Article
- Public interest in online searching of asthma information: insights from a Google trends analysis.BMC pulmonary medicine · 2025Article
- Patient Information Needs During Ambulatory Medication Changes: A Qualitative Study.Journal of patient-centered research and reviews · 2025Article
- Relevance of meeting general outpatients' information needs to their perceptions of healthcare quality in a hospital in Ghana: a Healthcare Quality Survey using modified SERVQUAL analysis.BMJ open quality · 2024Article
- Expectations concerning cancer treatment: perspectives of medical oncologists and patients on advanced, unresectable lung carcinoma.Frontiers in psychology · 2024Article
- A systematic review on factors influencing Middle Eastern women's utilization of healthcare services: The promise of mHealth.SAGE open medicine · 2024Review
- Article
- Self-reported medication information needs among medication users in a general population aged 40 years and above - the Tromsø study.BMC public health · 2022Article
- Information needs of parents of children with congenital anomalies across Europe: a EUROlinkCAT survey.BMC pediatrics · 2022Article
- Examining the Development of Information Needs Assessment Questionnaires in Oncology: Protocol for a Scoping Review.JMIR research protocols · 2022Article
- Development and content validity of the Experienced Patient-Centeredness Questionnaire (EPAT)-A best practice example for generating patient-reported measures from qualitative data.Health expectations : an international journal of public participation in health care and health policy · 2022Article
- Use of Standardized and Non-Standardized Tools for Measuring the Risk of Falls and Independence in Clinical Practice.International journal of environmental research and public health · 2021Article
- Information Needs of Black Prostate Cancer Patients Receiving Treatment Within the South African Public Healthcare System.Oncology and therapy · 2020Article
- Assessment of patient centredness through patient-reported experience measures (ASPIRED): protocol of a mixed-methods study.BMJ open · 2018Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
7 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundProviding patient information is a central aspect of patient-centered care. Fulfilling personal information needs has positive effects on several health-related outcomes. Measurement instruments help to identify individual information needs in an effective way. The present study gives an overview of existing information needs measures and further evaluates the quality of their psychometric properties and their psychometric studies.
methodsWe conducted a systematic search on psychometric studies of measures that assess information needs in PubMed and Embase. Furthermore, we carried out a secondary search with reference and citation tracking of the included articles. Title, abstracts and full texts were screened by two independent reviewers for eligibility. We extracted data on content of the measures, validation samples and psychometric properties. In addition we rated the methodological quality with the COSMIN checklist and the quality of psychometric properties with the criteria of Terwee and colleagues.
results24 studies on 21 measures were included. Most instruments assessed information needs of patients with cancer or cardiac diseases. The majority of the instruments were in English language and from western countries. Most studies included information on internal consistency and content validity. The ratings showed mixed results with clear deficiencies in the methodological quality of most studies. DISCUSSION: This is the first systematic review that summarized the existing evidence on measures on patient information needs using two instruments for a systematic quality assessment. The results show a need for more psychometric studies on existing measures. In addition, reporting on psychometric studies needs to be improved to be able to evaluate the reliability of the psychometric properties. Furthermore, we were not able to identify any measures on information needs for some frequent chronic diseases. Other methods to elicit information needs (e.g. open-ended interviews, question prompt sheets) could be considered as alternatives if sound measures are missing.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.