ArticlePalliative medicine2019
Perspectives of bereaved relatives of patients with haematological malignancies concerning preferred place of care and death: A qualitative study.
Article in Palliative medicine, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 21 papers, 2 of them syntheses that pooled it.
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Who cites it
21 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- Systematic Review and Meta-Synthesis about Patients with Hematological Malignancy and Palliative Care.Asian Pacific journal of cancer prevention : APJCP · 2022Pooled it
- Hospice care access inequalities: a systematic review and narrative synthesis.BMJ supportive & palliative care · 2022Pooled it
- Capturing the Lived Experiences of Informal Care in Acute Leukaemia: A Multinational Qualitative Study.The patient · 2026Article
- Family carers' experiences of serious illness conversations in haematological malignancies - a qualitative interview study.BMC palliative care · 2026Article
- Challenges in hospice and end-of-life care in the transfusion-dependent patient.Hematology. American Society of Hematology. Education Program · 2024Review
- Lived experiences of end-of-life care at home in the UK: a scoping review of qualitative research.The British journal of general practice : the journal of the Royal College of General Practitioners · 2024Article
- District nurses experiences in providing terminal care in rural and more urban districts. A qualitative study from the Faroe Islands.Scandinavian journal of primary health care · 2024Article
- End-of-Life Care of Acute Myeloid Leukemia Compared with Aggressive lymphoma in Patients Who Are Eligible for Intensive Chemotherapy: An Observational Study in a Japanese Community Hospital.Palliative medicine reports · 2023Article
- Cohort Profile Update: The Haematological Malignancy Research Network (HMRN) UK population-based cohorts.International journal of epidemiology · 2022Article
- Factors influencing place of death and disenrollment among patients receiving specialist palliative care.Acta bio-medica : Atenei Parmensis · 2022Article
- Exploring Experiences of Bereaved Caregivers of Older Adult Patients With Acute Myeloid Leukemia.Clinical journal of oncology nursing · 2022Article
- Factors related to satisfaction of cancer patients with transfer arrangements made by university hospitals at the end-of-life in Japan: a cross-sectional questionnaire survey of bereaved family members.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2021Article
- What is known about palliative care in adult patients with allogeneic stem cell transplantation (allo-SCT)?Annals of hematology · 2021Review
- Palliative care in onco-hematology: a perspective.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2021Article
- Goal of a "Good Death" in End-of-Life Care for Patients with Hematologic Malignancies-Are We Close?Current hematologic malignancy reports · 2021Review
- Timing of do-not-resuscitate orders and health care utilization near the end of life in cancer patients: a retrospective cohort study.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2021Article
- Preferred and actual place of death in haematological malignancies: a report from the UK haematological malignancy research network.BMJ supportive & palliative care · 2021Article
- Caregivers of Patients with Hematological Malignancies within Home Care: A Phenomenological Study.International journal of environmental research and public health · 2020Article
- Article
- Haematology nurses' perspectives of their patients' places of care and death: A UK qualitative interview study.European journal of oncology nursing : the official journal of European Oncology Nursing Society · 2019Article
Corrections and comments
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Authors and funding
8 authors.
Funding
Abstract
backgroundPeople with haematological malignancies have different end-of-life care patterns from those with other cancers and are more likely to die in hospital. Little is known about patient and relative preferences at this time and whether these are achieved.
aimTo explore the experiences and reflections of bereaved relatives of patients with leukaemia, lymphoma or myeloma, and examine (1) preferred place of care and death; (2) perceptions of factors influencing attainment of preferences; and (3) changes that could promote achievement of preferences.
designQualitative interview study incorporating 'Framework' analysis. SETTING/
participantsA total of 10 in-depth interviews with bereaved relatives.
resultsAlthough most people expressed a preference for home death, not all attained this. The influencing factors include disease characteristics (potential for sudden deterioration and death), the occurrence and timing of discussions (treatment cessation, prognosis, place of care/death), family networks (willingness/ability of relatives to provide care, knowledge about services, confidence to advocate) and resource availability (clinical care, hospice beds/policies). Preferences were described as changing over time and some family members retrospectively came to consider hospital as the 'right' place for the patient to have died. Others shared strong preferences with patients for home death and acted to ensure this was achieved. No patients died in a hospice, and relatives identified barriers to death in this setting.
conclusionPreferences were not always achieved due to a series of complex, interrelated factors, some amenable to change and others less so. Death in hospital may be preferred and appropriate, or considered the best option in hindsight.
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