ArticleJournal of cancer education : the official journal of the American Association for Cancer Education2020
Importance of and Satisfaction with Information about Their Disease in Cancer Patients.
Article in Journal of cancer education : the official journal of the American Association for Cancer Education, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 15 papers, 1 of them a synthesis that pooled it.
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The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
15 citing papers in PubMed, 1 synthesis or guideline pooled it, 20 citations in OpenAlex.
- Addressing cancer survivors' information needs and satisfaction: a systematic review of potential intervention components for survivors with a rare cancer type.Orphanet journal of rare diseases · 2024Pooled it
- Vaginal and vulvar cancer patient experiences of the information pathway from pre-diagnosis to treatment.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2026Article
- Information Seeking Behaviors and Preferences of Cancer Survivors: A Cross-sectional Study in Shanghai, China.Journal of cancer education : the official journal of the American Association for Cancer Education · 2026Article
- Patient-reported outcomes regarding the use of complementary and alternative medicine (CAM) in BCR::ABL1-negative myeloproliferative neoplasias.Journal of cancer research and clinical oncology · 2026Article
- Cancer patients' satisfaction with day care unit services have impact on their quality of life.Medicine and pharmacy reports · 2025Article
- Mapping the Unmet Informational Needs of Young Portuguese Female Cancer Survivors: Psychometric Validation of a Multidimensional Scale.Healthcare (Basel, Switzerland) · 2025Article
- Adverse events associated with Implantable Collamer Lens: insights from the FDA MAUDE database.Frontiers in medicine · 2025Article
- Patient-Nurse Communication in an Oncology Hospital Setting: A Qualitative Study.Healthcare (Basel, Switzerland) · 2024Article
- Information needs during cancer care: Qualitative research with locally advanced cervical cancer patients in Brazil, China, Germany, & the US.Gynecologic oncology reports · 2024Article
- Lay etiology concepts of cancer patients do not correlate with their usage of complementary and/or alternative medicine.Journal of cancer research and clinical oncology · 2023Article
- Patient-reported experiences with side effects of kidney cancer therapies and corresponding information flow.Journal of patient-reported outcomes · 2022Article
- Patient Satisfaction Determinants of Inpatient Healthcare.International journal of environmental research and public health · 2021Article
- Treatment burden experienced by patients with lung cancer.PloS one · 2021Article
- Beliefs and Information Seeking in Patients With Cancer in Southwest China: Survey Study.JMIR cancer · 2020Article
- Cancer Patient Motives and Expectations on Non-medical Practitioners.In vivo (Athens, Greece)Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
7 authors at 2 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
To learn more about information needs and satisfaction with provided information among cancer patients and whether dissatisfaction with information has any association with how therapy decisions are made. An online survey was conducted during March 2015 and January 2016 by the German non-profit patient organization "Das Lebenshaus e.V." among their members with rare solid tumors. A total of 338 records was analyzed. The majority found information on their disease important and was satisfied with the provided information. The participants were less satisfied with the information concerning management of side effects than with other aspects of information (p < .001). Support groups, lectures, and the oncologist were rated as the most helpful sources of information followed by a second opinion and media. Participants who were dissatisfied with the information more often made the decision on the treatment alone by themselves (p < .001). Our results show a high satisfaction with disease-related information among our study participants. Improvements could be made by offering more information on the management of side effects and by giving more information about support groups, reliable websites, and other helpful media.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.