ArticleJournal of general internal medicine2019
Association of Health Literacy and Numeracy with Interest in Research Participation.
Article in Journal of general internal medicine, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 27 papers, 1 of them a synthesis that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
27 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Video-Based Educational Interventions for Patients With Chronic Illnesses: Systematic Review.Journal of medical Internet research · 2023Pooled it
- Standard HIPAA Authorization Forms Decreased Response Rates for a Multi-site Pragmatic Trial.Journal of general internal medicine · 2025Trial
- Recruitment Methods, Inclusion, and Successful Participation in a Longitudinal Clinical Trial Using Ecological Momentary Assessment.Health education & behavior : the official publication of the Society for Public Health Education · 2024Trial
- Mobile App Intervention of a Randomized Controlled Trial for Patients With Obesity and Those Who Are Overweight in General Practice: User Engagement Analysis Quantitative Study.JMIR mHealth and uHealth · 2024Trial
- Trial
- Australian Women's Intentions and Psychological Outcomes Related to Breast Density Notification and Information: A Randomized Clinical Trial.JAMA network open · 2022Trial
- Trial
- Holistic view of understanding genetic predisposition and perceptions of genomic research in African communities: tradition, trust and transformation.Journal of community genetics · 2026Review
- CONNECT Platform to Increase Diverse Engagement and Enrollment in Cardiovascular Clinical Research: Rationale, Design, and Lessons Learned in Early Implementation.Journal of the American Heart Association · 2025Article
- Who is seeking information about traumatic brain injury? Characterizing online course participants.Health promotion international · 2024Article
- Challenges and potential solutions to enrollment in a clinical trial of arteriovenous fistula vs arteriovenous graft vascular access strategy.JVS-vascular insights · 2024Article
- Research recruitment and consent methods in a pandemic: a qualitative study of COVID-19 patients' perspectives.BMC medical research methodology · 2023Article
- "There's not enough studies": Views of black breast and ovarian cancer patients on research participation.Cancer medicine · 2023Article
- Assessing patient-level knowledge of precision medicine in a community health center setting.Journal of community genetics · 2023Article
- Overcoming barriers to informed consent in neurological research: Perspectives from a national survey.Research ethics · 2023Article
- Exploring the Relationship between Medical Research Literacy and Respondents' Expressed Likelihood to Participate in a Clinical Trial.International journal of environmental research and public health · 2022Article
- Recruiting Adolescent and Young Adult Cancer Survivors for Patient-Reported Outcome Research: Experiences and Sample Characteristics of the SURVAYA Study.Current oncology (Toronto, Ont.) · 2022Article
- Demographics, health literacy and health locus of control beliefs of Australian women who take complementary medicine products during pregnancy and breastfeeding: A cross-sectional, online, national survey.Health expectations : an international journal of public participation in health care and health policy · 2022Article
- Motivators and barriers towards clinical research participation: A population-based survey from an Arab MENA country.PloS one · 2022Article
- Article
Corrections and comments
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Authors and funding
10 authors.
Funding
Abstract
backgroundThere is much attention to recruitment of diverse populations in research, but little is known about the influence of health literacy and numeracy skills.
objectiveTo determine if health literacy and numeracy affect individuals' interest to participate in research studies.
designCross-sectional survey data were pooled from 3 large studies conducted in the Mid-South Clinical Data Research Network.
participantsAdult patients enrolled in 1 of 3 Mid-South Clinical Data Research Network studies. MAIN MEASURES: The survey domains included demographic items, the 3-item Brief Health Literacy Screen (range 3-15), and the 3-item Subjective Numeracy Scale (range 3-18). The outcome was a sum index measure of a 7-item instrument (range 7-21) assessing individuals' interest in participating in different types of research, including research that involves taking surveys, giving a blood sample, participating via phone or internet, taking an investigational medication, meeting at a local community center or school, including family, or staying overnight at a hospital. KEY
resultsRespondents (N = 15,973) were predominately women (65.5%), White (81.4%), and middle aged (M = 52.8 years, SD = 16.5); 32.4% previously participated in research. Self-reported health literacy was relatively high (M = 13.5 out of 15, SD = 2.1), and subjective numeracy skills were somewhat lower (M = 14.3 out of 18, SD = 3.6). After adjustment for age, gender, race, income, education, and other characteristics, lower health literacy and numeracy skills were each independently associated with less interest in research participation (p < 0.001 for each). Prior research participation was associated with greater interest in future research participation (p < 0.001).
conclusionsAfter adjustment for factors known to be predictive of interest, individuals with lower health literacy or numeracy scores were less interested in participating in research. Additional work is needed to elucidate reasons for this finding and to determine strategies to engage these populations.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.